Celiac Disease Foundation
Celiac Disease Foundation
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About this organization
Mission
Accelerating diagnosis, treatments, and a cure for celiac disease through research, education, and advocacy.
About
FROM SPONSORING THE FIRST SEROLOGY WORKSHOP, WHICH LED TO TODAY'S CELIAC DISEASE BLOOD TEST, TO SERVING ON THE PLANNING COMMITTEE FOR THE LANDMARK 2004 NIH CONSENSUS DEVELOPMENT CONFERENCE ON CELIAC DISEASE, ADVOCATING ON CAPITOL HILL FOR GLUTEN-FREE LABELING LAWS, DISABILITY BENEFITS, AND THERAPEUTIC ALTERNATIVES TO THE GLUTEN-FREE DIET, PARTNERING WITH MAINSTREAM MANUFACTURERS IN CREATING TODAY'S GLUTEN-FREE MARKETPLACE, AND OFFERING THE NATION'S ONLY CELIAC DISEASE PATIENT REGISTRY, ICURECELIAC, THE FOUNDATION HAS PLAYED A CRITICAL ROLE IN IMPROVING THE LIVES OF THOSE AFFLICTED AND THEIR LOVED ONES. THE FOUNDATION WORKS CLOSELY WITH RESEARCHERS TO ACCELERATE TREATMENTS AND A CURE, PROVIDING DATA THROUGH ICURECELIAC, RECRUITING FOR CLINICAL TRIALS AND RESEARCH STUDIES, TRAINING PATIENT ADVOCATES, AND PARTNERING WITH THE NORTH AMERICAN SOCIETY FOR THE STUDY OF CELIAC DISEASE (NASSCD) TO FUND THE ANNUAL YOUNG INVESTIGATOR AWARD.ICURECELIAC IS A PATIENT REGISTRY DEDICATED TO ENHANCING AND ACCELERATING RESEARCH EFFORTS TO BETTER UNDERSTAND AND ULTIMATELY CURE CELIAC DISEASE. ICURECELIAC ALLOWS PATIENTS TO CONTRIBUTE MEDICAL INFORMATION AND THEIR EXPERIENCES LIVING WITH CELIAC DISEASE AND NON-CELIAC WHEAT/GLUTEN SENSITIVITY. SINCE ITS LAUNCH IN FEBRUARY OF 2016, MORE THAN 4,000 PARTICIPANTS HAVE CONTRIBUTED THEIR INFORMATION, WHICH WILL HELP RESEARCHERS TO BETTER UNDERSTAND, DEVELOP TREATMENTS FOR, AND ULTIMATELY CURE CELIAC DISEASE.THE FOUNDATION HOSTS THE WORLD'S MOST TRAFFICKED WEBSITE FOR CELIAC DISEASE AT CELIAC.ORG WITH MORE THAN 7 MILLION ANNUAL VISITORS, DELIVERING THE LATEST INFORMATION AND DIGITAL TOOLS FOR PATIENTS AND PROVIDERS. IN ADDITION, THE FOUNDATION OPERATES THE GLUTEN-FREE MARKETPLACE, AVAILABLE AS AN APP FOR BOTH IPHONE AND ANDROID. THE FOUNDATION ALSO HOSTS THE NATION'S LARGEST CELIAC DISEASE PATIENT CONFERENCE AND GLUTEN-FREE EXPO. FOUNDATION VOLUNTEERS PARTICIPATE AS CELIAC DISEASE PATIENT ADVOCATES AND STUDENT AMBASSADORS, DELIVERING PROGRAMS AND SERVICES TO THE DIAGNOSED AND YET TO BE DIAGNOSED. OUR COMMUNITY FUNDRAISING PROGRAM, TEAM GLUTEN-FREE, PROVIDES A SIMPLE WAY FOR ATHLETES AND NON-ATHLETES ALIKE TO RAISE AWARENESS AND FUNDS FOR OUR PROGRAMS FOR ADVOCACY, EDUCATION, AND ADVANCING RESEARCH. WE PUBLISH MONTHLY E-NEWSLETTERS DEDICATED TOPROVIDING THE LATEST INFORMATION REGARDING RESEARCH, ADVOCACY, EDUCATION, AND THE GLUTEN-FREE DIET.
Interesting data from their 2019 990 filing
The mission of the non-profit, as stated in the filing, is “Celiac disease foundation drives diagnosis, treatment, and a cure through research, education and advocacy to improve the quality of life for all people affected by celiac disease and non-celiac wheat/gluten sensitivity.”.
When referring to its tasks, they were described as: “Celiac disease foundation drives diagnosis, treatment, and a cure through advocacy, education, and research to improve the quality of life for all people affected by celiac disease and non-celiac wheat/gluten sensitivity.”.
- The non-profit is operating legally in the state of CA.
- The non-profit's address for the year 2019 is listed as 20350 VENTURA BLVD NO 240, WOODLAND HILLS, CA, 913642469 in the filing.
- The form submitted by the non-profit organization for 2019 reports 7 employees.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $700,527.
- The organization has 16 independent voting members.
- The organization was formed in 1990.
- The organization pays $637,844 in salary, compensation, and benefits to its employees.
- The organization pays $50,334 in fundraising expenses.