Lyme Disease Association Inc.
Lyme Disease Association Inc.
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About this organization
Mission
The Lyme Disease Association, Inc. (LDA) raises funds for research, education, patient support. LDA partnered to establish the Columbia University Lyme & Tick-Borne Disease Research Center, provides research grants, CME physician conferences, public presentations.
About
Grants: since 1992 LDA has provided 115 research grants, including researchers awarded grants totaling $142,000 in 2018 to Columbia University, University of Washington, and the Northeast Wildlife DNA Laboratory (PA). Publications in peer-reviewed journals enable the field of Lyme disease to move forward - other scientists build upon the foundation of previous research - and LDA has been acknowledged as a research funder in 50 peer-reviewed scientific journal articles including 4 new journal publications in 2018 from researchers LDA has funded.LDA also awards scientific educational grants to entities including hospitals, universities and Lyme organizations. It has awarded 138 scientific education grants to date, including $15,300 for 2018 grants. Total of the research and education grants in 2018 was $157,300, and one prior year unused grant totaling $14,933 as returned.
Interesting data from their 2019 990 filing
The purpose of the non-profit, as set forth in the filing, is “The organization is organized exclusively for charitable, educational and scientific purposes and is dedicated to promoting awareness of and control of the spread of lyme disease and other tick-borne diseases (tbd) and their complications.”.
When discussing its purpose, they were characterized as: “The lyme disease association, inc. (lda) raises funds for research, education, patient support. lda partnered to establish the columbia university lyme & tick-borne disease research center, provides research grants, cme physician conferences, public presentations.”.
- The state in which the non-profit is legally authorized to operate is NJ, as reported.
- The filing confirms that the non-profit's address in 2019 was PO Box 1438, Jackson, NJ, 08527.
- The form of the non-profit reports 0 employees as of 2019.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $105,315.
- The remuneration of the CEO of the organization is based on an independent review and approval process.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 6 independent voting members.
- The organization was formed in 1992.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization engages in lobbying activities.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $0 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.