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Platelet Disorder Support Association, Inc.

Platelet Disorder Support Association, Inc.

Brecksville, OH 44141
Tax ID22-3611011

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About this organization

Revenue

$1,592,213

Expenses

$1,033,573

Website

pdsa.org

Mission

The Platelet Disorder Support Association is dedicated to assisting patients with immune thrombocytopenia and other platelet disorders through education, advocacy, and research.

About

SEE SCHEDULE O IN 2019, PDSA PROVIDED SUPPORT SERVICES THAT PROMOTED PATIENT COMMUNICATION WITH OTHER PATIENTS, PHYSICIANS AND OTHER MEDICAL PROVIDERS, INCLUDING 53 LOCAL SUPPORT GROUPS ACROSS THE U.S. AND CANADA, A PARENTS TELECONFERENCE SUPPORT GROUP; ONLINE DISCUSSION GROUP, NATIONAL PATIENT CONFERENCE, PERSONAL COUNSELING AND REFERRAL SERVICE TO MORE THAN 1,000 PEOPLE; THE PDSA COLLEGE SCHOLARSHIP PROGRAM PROVIDED FINANCIAL ASSISTANCE TO SENIOR HIGH SCHOOL STUDENTS, COLLEGE STUDENTS OR ADULTS INTERESTED IN CONTINUING EDUCTION WHO ARE SUFFERING WITH ITP OR A SIMILAR INHERITED OR NON-INHERITED PLATELET DISORDER WITH FIVE AWARDS BEGIN GIVEN OUT IN 2019; THE ITP POKE- R-CLUB FOR KIDS WITH ITP PROVIDED BUZZY DEVICES AND PRIZES TO CHILDREN WITH ITP; PDSA PROVIDED A WIDER VARIETY OF ONLINE AND PRINTED INFORMATION TO TENS OF THOUSANDS OF PATIENTS, CAREGIVERS AND MEDICAL PROFESSIONALS IN MORE THAN 150 COUNTRIES. PDSA ALSO OVERSEES THE GLOBALITP.ORG WEBSITE AND THE INTERNATIONAL ITP ALLIANCE WITH 32 PATIENT ASSOCIATIONS FROM 27 COUNTIRES. PDSA'S RESEARCH PROGRAM AWARDED THREE 20,000 GRANTS TO INVESTIGATORS CONDUCTING INNOVATIVE ITP PATIENT-CENTERED RESEARCH; THE ITP NATURAL HISTORY STUDY REGISTRY ENROLLED OVER 1,000 PARTICIPATNS WHICH RESULTED IN QUALITY OF LIFE RESEARCH PRESENTED AT THE AMERICAN SOCIETY OF HEMATOLOGY (ASH) MEETING, THE EURPOEAN HEMATOLGY ASSOCIATION (EHA) CONGRESS AND THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) SUMMIT.

Interesting data from their 2020 990 filing

The non-profit's mission is outlined in the filing as being “Pdsa's mission is to enhance the lives of people with immune thrombocytopenia (itp) and other platelet disorders through education, advocacy, research and support.”.

When outlining its responsibilities, they were referred to as: “Pdsa's mission is to enhance the lives of people with immune thrombocytopenia (itp) and other platelet disorders through education, advocacy, research and support.”.

  • The state in which the non-profit operates has been officially reported as NJ.
  • The filing reveals the non-profit's address in 2020 to be 8751 BRECKSVILLE RD NO 150, CLEVELAND, OH, 44141.
  • As per the non-profit's form for 2020, they have 9 employees on their payroll.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor-advised fund.
  • Is not a private foundation.
  • Expenses are between $500,000 and $1,000,000+.
  • Revenue is greater than $1,000,000.
  • Revenue less expenses is $558,640.
  • The CEO salary policy within the organization is subject to review and endorsement by an impartial party.
  • The organization has a written policy that describes how long it will retain documents.
  • The organization has 9 independent voting members.
  • The organization was formed in 1998.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule O.
  • The organization pays $485,548 in salary, compensation, and benefits to its employees.
  • The organization pays $48,670 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has a business related family member transaction.
  • The organization has fundraising events.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.

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