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Lorenzo's House

Lorenzo's House

Chicago, IL 60640
Tax ID87-1604169

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About this organization

Revenue

$679,955

Expenses

$650,446

Mission

At Lorenzo’s House we empower young people and their families affected by younger-onset dementia by shifting the narrative: curing isolation, building community and driving dementia justice.

About

Lorenzo’s House is the global hub of support for the young people and their families affected by younger-onset dementia - having served over 2000 family members across 45 states and 10 countries. We are a non-profit social impact organization offering free VIRTUAL programming to families, with a focus on young people ages 4 to 35+ of a parent who has lived with, or is living with any form of younger-onset dementia. Our 3 Pillar Programs: are designed to cure isolation—MATCH, build community—CLUBS and drive Dementia justice—SUMMIT. Cure Isolation. MATCH is one-on-one, caregiver to caregiver connection with a peer who understands - to share insights, resources and friendship. The carer is welcomed into Lorenzo’s House through a 30-45 minute Lighthouse virtual meeting with a trained volunteer to understand what they are looking for in a “MATCH”’—from the ability to meet in person, to a similar family structure to the same diagnosis. From the words of two twenty-six-year-old young adults from the US who were ‘matched’: “There was a common thread in our stories, and an immediate sense of validation, visibility, and understanding. It was surreal to drop the mask I wear with my peers every day and have someone meet me,” and “Our connection was an instant relief. Someone my age knew what I was going through without even having to explain my whole story.” Build Community. CLUBS are our brave safe virtual spaces for carers to find community, share resources and bring light. Our youth Clubs are organized by age groups—young children (4-7 yo), children (8-12 yo), teens (13-17 yo), and young adults (18+) and held twice monthly. Our adult carer Clubs—’Bright Brunch’ and ‘Light Lounge’—are held once monthly. The Clubs are co-facilitated by a Lorenzo’s House Dementiacator (a term we have coined that is defined as trained and experienced in dementia and passionate about educating others) and an Adult or Youth Lead (trained volunteer). A twelve-year-old from Chicago shared, “When I was 10, I found the ‘Light Club’. Ever since, it has helped me learn how to show light to my Dad and how to cope with all of my stress and emotions.” A fourteen-year-old carer from California shared, “I feel calm, relaxed after ‘Light Club’. I think deeply there. It’s a place where I can talk about my Dad’s condition. I get tips from other kids too. We all can relate to each other.” We recently added our ‘Shine On’ for young people (ages 8-35+) whose parent has passed after living with younger-onset dementia. A sixteen-year-old carer from the UK, expressed that “After feeling isolated many times during my mom's journey and after her passing, I find the kinship with others in ‘Shine On’ to be healing and uplifting.” Drive Dementia Justice. SUMMIT is our worldwide virtual youth event, this year to be held on June 14 and 15, 2024, designed to educate and empower—connecting youth living a common experience and building dementia advocates and thought leaders. This transformative event is often the first time young people are connected to peers who are walking their similar journey. Session choices include: Mindfulness, Positive Vibes with Arts & Music, Brain Health, and Ask the Neurologist and more.From a 26-year-old Canadian carer, ‘I didn’t talk about my Dad’s diagnosis for years for fear of being judged and no one understanding my journey. I realized how important it is to share my story and raise awareness. I am thankful to Lorenzo’s House for giving me the space to be able to do this.” Summit has given us the space to build, reflect and practice our ’EmpowermentPLUS model’ that is designed to dismantle stigma together–driving dementia justice. In the words of our twenty-three-year-old carer from the United Kingdom, ”often, people are unaware about our parent’s diagnosis and may make unnecessary comments—causing uncomfortable feelings and placing us in unfair situations. At Lorenzo’s house, we grapple together and are designing our own tools and mindsets to respond, restore our own sense of family dignity, and ultimately shine light on stigma and dismantle it.”