Lupus Research Alliance, Inc.
Lupus Research Alliance, Inc.
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About this organization
Mission
The Lupus Research Alliance unites the global lupus community in bold determination to free the world of lupus through the power of science. We will transform the lives of people affected by lupus as we welcome and embrace a new scientific era, pioneer innovation, push the frontiers of knowledge, enlist diverse new scientific talent, and lead the drive to new treatments, prevention and cure.
About
RESEARCH:THE LUPUS RESEARCH ALLIANCE IS THE WORLD'S LEADER IN FUNDING LUPUS RESEARCH, SECOND ONLY TO THE NATIONAL INSTITUTES OF HEALTH. THE ORGANIZATION'S SCIENTIFIC ADVISORY BOARD IS COMPRISED OF TOP SCIENTIFIC EXPERTS IN THE FIELD WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA. SINCE ITS INCEPTION, THE LUPUS RESEARCH ALLIANCE HAS COMMITTED OVER $193 MILLION TO FUND LUPUS RESEARCH PROJECTS.CONTINUED ON SCHEDULE OIN 2018 ALONE, OVER $8.5 MILLION WAS AWARDED IN GRANTS FOR HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS THAT CAN LEAD TO A CURE: 1) 7 TARGET IDENTIFICATION IN LUPUS (TIL) THREE-YEAR GRANTS WITH A FOCUS OF IDENTIFYING NEW DRUG TARGETS AND HELPING FACILITATE EXPLORATION OF DRUG DEVELOPMENT WITH A TOTAL OVER $4 MILLION OVER THREE YEARS. 2) 6 NOVEL RESEARCH PROGRAM GRANTS THAT FOCUS ON INNOVATIVE EARLY-STAGE FUNDAMENTAL RESEARCH THAT ILLUMINATE THE DISEASE MECHANISM; AWARDED $1.8 MILLION OVER THREE YEARS.3) 2 DISTINGUISHED INNOVATOR AWARDS (DIA) FOCUS ON UNCOVERING THE UNDERLYING CAUSES OF LUPUS THAT CAN LEAD TO A CURE FOR $1 MILLION OVER TWO YEARS.4) JOINT LUPUS RESEARCH ALLIANCE/PFIZER'S CENTERS FOR THERAPEUTIC INNOVATION (CTI) GRANTS WERE AWARDED FOR OVER $1.2 MILLION OVER ONE YEAR.5) THE LUPUS INSIGHT PRIZE WAS AWARDED FOR $100,000. THIS AWARD RECOGNIZES AND FURTHERS WORK BY A LEADING LUPUS RESEARCHER THAT HAS MADE A MAJOR CONTRIBUTION TO THE FIELD.6) THE LUPUS RESEARCH ALLIANCE SUPPORTED THE ACCELERATING MEDICINES PARTNERSHIP RHEUMATOID ARTHRITIS AND LUPUS AT THE FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH (FNIH) AT AN ADDITIONAL $100,000 COLLABORATIONS BETWEEN GOVERNMENT, INDUSTRY, AND NON-PROFIT FOUNDATION PARTNERS TO IDENTIFY AND VALIDATE THERAPEUTIC TARGETS.THE LUPUS RESEARCH ALLIANCE'S UNIQUE FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS IN THE NEAR FUTURE. THROUGH A COMPETITIVE PEER-REVIEW PROCESS PROJECTS BY THE LUPUS RESEARCH ALLIANCE AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE. BECAUSE THE LUPUS RESEARCH ALLIANCE BOARD OF DIRECTORS FUNDS THE ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE LUPUS RESEARCH ALLIANCE'S LUPUS RESEARCH PROGRAMS.
Interesting data from their 2019 990 filing
The filing sets forth the mission of the non-profit as “The lupus research alliance leads the world in transforming the lives of people affected with lupus by using the power of science to drive new treatments, prevent disease progression, and find a cure.”.
When detailing its responsibilities, they were listed as: “To support research to prevent, treat and cure lupus.”.
- The state in which the non-profit is legally permitted to operate is NY.
- The address of the non-profit for 2019 according to the filing is 275 MADISON AVE 10TH FLOOR, NEW YORK, NY, 10016.
- The number of employees reported by the non-profit on their form as of 2019 is 40.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$3,836,132.
- The organization has 21 independent voting members.
- The organization was formed in 1999.
- The organization pays $4,888,001 in salary, compensation, and benefits to its employees.
- The organization pays $3,179,907 in fundraising expenses.
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