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Jeffrey Modell Foundation Inc.

Jeffrey Modell Foundation Inc.

New York, NY
Tax ID13-3380237

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About this organization

Revenue

$7,432,855

Expenses

$7,031,074

Mission

The foundation is dedicated to the early diagnosis, treatment and ultimate cure of primary immunodeficiency diseases. The foundation's primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The foundation generates support through contributions from the general public, industry, and government agencies. The foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.

About

The organization conducted public service advertising campaigns directed to the general public to create public awareness, as well as to educate both treating physicians and the general public about immunodeficiency diseases.

Interesting data from their 2019 990 filing

The non-profit's mission is outlined in the filing as being “The foundation is dedicated to the early diagnosis, treatment and ultimate cure of primary immunodeficiency diseases. the foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. the foundation generates support through contributions from the general public, industry, and government agencies. the foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.”.

When outlining its responsibilities, they were referred to as: “The foundation is dedicated to the early diagnosis, treatment and ultimate cure of primary immunodeficiency diseases. the foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. the foundation generates support through contributions from the general public, industry, and government agencies. the foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.”.

  • The state in which the non-profit operates has been officially reported as NY.
  • The filing reveals the non-profit's address in 2019 to be 780 THIRD AVENUE, NEW YORK, NY, 10017.
  • As per the non-profit's form for 2019, they have 12 employees on their payroll.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Has foreign activities.
  • Is not a donor-advised fund.
  • Is not a private foundation.
  • Expenses are greater than $1,000,000.
  • Revenue is greater than $1,000,000.
  • Revenue less expenses is $401,781.
  • The CEO salary policy within the organization is subject to review and endorsement by an impartial party.
  • The organization has a written policy that describes how long it will retain documents.
  • The organization has 49 independent voting members.
  • The organization was formed in 1986.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule J.
  • The organization is required to file Schedule O.
  • The organization pays $1,709,089 in salary, compensation, and benefits to its employees.
  • The organization pays $255,886 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has fundraising events.
  • The organization has grants to organizations.
  • The organization's financial statements were reviewed by an accountant.