Lupus Foundation Of America, Georgia Chapter Inc.
Lupus Foundation Of America, Georgia Chapter Inc.
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About this organization
Mission
The Georgia chapter provides the only statewide, valuable resources, programs and awareness efforts for 55,000 Georgians with lupus. Ninety percent of every dollar raised stays in Georgia to support our chapter's programs. We are here every day, providing resources, educational and medical information and referrals, educational seminars with medical experts, traditional and online support groups and grass-roots advocacy on the state and federal level. We also support the national research efforts of the Lupus Foundation working to advance the science and medicine of lupus
About
AS THE ONLY STATEWIDE VALUABLE RESOURCE FOR THE 55,000 GEORGIANS WITH LUPUS, THE GEORGIA CHAPTER PROVIDES THOUSANDS WITH FREE, VALUABLE EDUCATIONAL INFORMATION, PHYSICIAN REFERRALS, RESOURCES, SUPPORT GROUPS AND EDUCATIONAL PROGRAMS REACHING PATIENTS IN 120 OF THE 159 COUNTIES IN GEORGIA. NINETY PERCENT OF EVERY DOLLAR DONATED STAYS IN GEORGIA TO SUPPORT OUR PROGRAMS. THE CHAPTER ALSO SUPPORTS THE NATIONAL RESEARCH EFFORTS OF THE LUPUS FOUNDATION OF AMERICA, WORKING TO ADVANCE THE SCIENCE AND MEDICINE OF LUPUS TO BRING DOWN THE BARRIERS THAT HAVE IMPEDED PROGRESS IN LUPUS RESEARCH. DESPITE ITS PREVALENCE, LUPUS REMAINS ONE OF THE LEAST RECOGNIZABLE AND MOST MISUNDERSTOOD DISEASES IN BOTH THE MEDICAL AND LAY COMMUNITIES. THERE IS NO KNOWN CAUSE, NO CURE, AND THE INCIDENCE HAS INCREASED HUGELY IN THE PAST 20 YEARS. CURRENT TREATMENTS ARE OFTEN VERY TOXIC, THE SIDE EFFECTS OFTEN RIVALING THE SYMPTOMS OF THE DISEASE. WE REACH OUT TO OUR LUPUS CONSTITUENTS AND THEIR FAMILIES WITH OUR YEAR ROUND CHAPTER PROGRAMS AND EVENTS AND IN A VARIETY OF WAYS, FROM DIRECT MAIL TO ONLINE EMAILS BLASTS, WEBSITE UPDATES AND INFORMATION PLACEMENT IN DOCTORS' OFFICES: "OVER 60,000 VISITORS TO OUR WEBSITE IN THIS PAST YEAR "OVER 2900 INQUIRIES AND CHAPTER RESPONSES FROM PATIENTS AND FAMILIES FOR INFORMATION, RESOURCES AND REFERRALS "MORE THAN 10,000 FACEBOOK FANS AND 1070 PEOPLE FOLLOWING US ON TWITTER "MORE THAN 65,000 CONSTITUENTS IN OUR DATABASE, FROM 1000 IN 2006 "MORE THAN 26,000 CONSTITUENTS IN OUR EMAIL DATABASE, FROM 1500 IN 2007 "IN THE PAST YEAR, MORE THAN 500 PEOPLE ATTENDED OUR SYMPOSIUMS. "OUR SUPPORT GROUPS HAVE HAD AN ATTENDANCE OF AT LEAST 3000 IN MORE THAN 30 COMMUNITIES "MORE THAN 400 PEOPLE HAVE REGISTERED FOR OUR TELECONFERENCE SERVICES WITH AN ADDITIONAL 3200 HITS TO OUR WEBSITE FOR THE TAPED RECORDINGS AND INFORMATION "NEWLY DESIGNED WHAT IS LUPUS? BROCHURES ALREADY DISTRIBUTED IN DOCTORS' OFFICES ACROSS GEORGIA, WITH AN ADDITIONAL 30,000 REDESIGNED BROCHURES BEING DISTRIBUTED IN THE UPCOMING MONTHS "8,000 WALKERS AND FAMILIES WERE INSPIRED AND EMPOWERED AT THE 2018 WALK TO END LUPUS NOW, THE LARGEST LFA WALK IN THE NATION "OVER 200 GUESTS AT OUR 2017 NIGHT OF HOPE GALA, 50 GOLFERS AT OUR DRIVE FOR LUPUS NOW GOLF EVENT. OUR KEY ACCOMPLISHMENTS THIS YEAR INCLUDE: "EDUCATION: THE GEORGIA LUPUS SUMMIT, HELD AT THE RENAISSANCE WAVERLY HOTEL, WITH OVER 300 ATTENDEES AND TWELVE BREAKOUT SESSIONS, WAS PRESENTED SIMULTANEOUSLY IN ENGLISH AND SPANISH. "PATIENT RESOURCES: WE HELD OUR FOURTH SUPPORT GROUP RETREAT TO TRAIN 42 SUPPORT GROUP FACILITATORS AS PROFESSIONAL ACTIVISTS IN COMMUNITIES ACROSS GEORGIA. "ADVOCACY: THE GEORGIA CHAPTER WORKED WITH SENATOR RENEE UNTERMAN AND REPRESENTATIVE SHARON COOPER TO ADVOCATE FOR THE PASSING OF SB 352 CREATING THE GEORGIA COUNCIL ON LUPUS EDUCATION AND AWARENESS. THIS COUNCIL WILL ASSESS AND QUANTIFY LUPUS EDUCATION AND ADVOCACY EFFORTS FOR THE NEXT THREE YEARS "EMERGENCY FINANCIAL ASSISTANCE: THE GEORGIA CHAPTER DISTRIBUTED FUNDS TO HELP MORE THAN 75 PEOPLE LIVING WITH LUPUS WHO WERE IN FINANCIAL CRISIS. THE CHAPTER PAID UTILITY BILLS, CO-PAYMENTS FOR DOCTOR VISITS, RENT AND MUCH ALL THE WHILE COUNSELLING OUR CONSTITUENTS TO HELP THEM FIND SUSTAINABLE RESOURCES.
Interesting data from their 2019 990 filing
The filing outlines the non-profit's goal as “The lupus foundation of america is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services, and hope to all people affected by lupus. the georgia chapter's programs are the only statewide valuable resource for thousands of patients and families providing support and information, physician referrals, public and professional education and grass-roots advocacy”.
When explaining its purpose, the activities were outlined as: “See page 2 part iii”.
- As per legal reporting requirements, the state of operation for the non-profit is GA.
- The non-profit's address for 2019 is listed as 1850 LAKE PARK DR 101, SMYRNA, GA, 30080 in the filing.
- As per the non-profit's form, they have 10 employees as of 2019.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is -$177,310.
- The CEO compensation package within the organization is determined through a review and endorsement by a neutral party.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 10 independent voting members.
- The organization was formed in 1975.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule J.
- The organization is required to file Schedule O.
- The organization pays $410,205 in salary, compensation, and benefits to its employees.
- The organization pays $62,760 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization's financial statements were reviewed by an accountant.
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