ALS ONE
ALS ONE
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About this organization
Mission
ONE GOAL: To identify a breakthrough treatment and ultimate cure for ALS while improving the care now for those battling it.
About
ALS ONE is an unprecedented partnership of world leaders in Amyotrophic Lateral Sclerosis (ALS) research and care who have joined forces to help cut bureaucratic red tape to combat the disease more efficiently and effectively for all. RESEARCH ALS ONE cuts bureaucratic red tape to help ALS researchers and clinicians focus on what they do best—conducting research for treatments and an eventual cure for this devastating disease ALS ONE links innovative researchers, medical providers, and care resources to drive key studies forward and initiate efforts, such as transportation studies, that fall outside of medicine Our model encourages peer review of promising study designs, structures, and results CARE ALS ONE’s world-leading clinicians and care providers have united to create a powerful network that actively works to improve the care model for those battling ALS today Through care initiatives, our partners are able to obtain the critical data that fuel research efforts FUNDRAISING Your donation will directly fund the research for a cure for ALS, supporting the initiation and completion of key clinical trials Your support also directly impacts those battling ALS by providing essential equipment and resources that are often not covered by insuranc
Interesting data from their 2019 990 filing
The purpose of the non-profit is outlined in the filing as “Als one (the organization") is a not-for-profit organization organized in september 2015 and incorporated under the laws of the commonwealth of massachusetts. the organization is an unprecedented partnership of the world's top leaders, researchers, and doctors and caretakers in als from massachusetts general hospital, umass medical center, harvard medical school, als therapy development institute, and compassionate care als, who have joined forces on a shared science and care plan. together, they have committed to finding a treatment or cure for als by the year 2020 with proper funding, and improving the care for those who have already been diagnosed with als.”.
When discussing its operations, they were defined as: “Als one (the organization") is a not-for-profit organization organized in september 2015 and incorporated under the laws of the commonwealth of massachusetts. the organization is an unprecedented partnership of the world's top leaders, researchers, and doctors and caretakers in als from massachusetts general hospital, umass medical center, harvard medical school, als therapy development institute, and compassionate care als, who have joined forces on a shared science and care plan. together, they have committed to finding a treatment or cure for als by the year 2020 with proper funding, and improving the care for those who have already been diagnosed with als.”.
- The state where the non-profit operates has been legally reported as MA.
- The filing indicates that the non-profit's address in 2019 is located at 8 INDUSTRIAL WAY, WHITMAN, MA, 02382.
- The non-profit has reported 1 employees on their form as of 2019.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$93,243.
- The organization has 3 independent voting members.
- The organization was formed in 2015.
- The organization pays $123,871 in salary, compensation, and benefits to its employees.
- The organization pays $212,608 in fundraising expenses.