Myasthenia Gravis Foundation of America, Inc.
Myasthenia Gravis Foundation of America, Inc.
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About this organization
Mission
Our mission: Create connections, enhance lives, cure MG Our mission delivery strategies: -Create a robust resource network to improve access and enhance lives for those with MG. Build a nationwide support network for those affected by MG. -Spearhead and support promising research on MG. -Improve time to diagnosis and care for MG through professional education, diagnostic tools and outreach. -Raise awareness about MG through advocacy, communications and education.
About
Evaluating, funding, and disseminating critical research: funding of high impact MG research at prominent universities and medical institutions, including leveraging funds in collaboration with the American Brain Foundation to bring new scientists to MG research through fellowships, and funding pilot grants aimed at leading to larger studies. MGFA maintains the only US MG patient registry, which has been grown to include nearly 3,000 participants. MGFA sponsors an annual scientific session in conjunction with the meeting of the AANEM, attracting as many as 150 attendees. MGFA provides information to members about research initiatives and progress, and sends e-blasts to more than 20,000 people when there is breaking news.
Interesting data from their 2019 990 filing
The non-profit's aim, as stated in the filing, is “Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.”.
When detailing its duties, they were outlined as: “Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.”.
- The non-profit has complied with legal obligations by reporting their state of operation as NY.
- The non-profit's address in 2019 is noted in the filing as 355 LEXINGTON AVENUE 15TH FLOOR, NEW YORK, NY, 10017.
- The non-profit's form for the year 2019 reports a total of 1 employees on their payroll.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $629,600.
- The organization has 20 independent voting members.
- The organization was formed in 1952.
- The organization pays $24,842 in salary, compensation, and benefits to its employees.
- The organization pays $248,369 in fundraising expenses.