Ald Connect Inc.
Ald Connect Inc.
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About this organization
Mission
To improve health outcomes for individuals with X-linked adrenoleukodystrophy ('ALD') by raising awareness, empowering patients, and accelerating the translation
About
ALDC sponsors an annual meeting, maintains a website with educational content, produces free webinars, hosts support calls for various patient groups, and raises awareness. ALDC also hosts a patient portal and collects patient health data. ALDC works with its industry advisory council to bring industry representatives together to encourage their work in the ALD/AMN field.
Interesting data from their 2019 990 filing
According to the filing documents, the non-profit's mission is defined as “To improve health outcomes for”.
When referring to its tasks, they were referred to as: “To improve health outcomes for individuals with x-linked adrenoleukodystrophy ("ald") by raising awareness, empowering patients, and accelerating the translation”.
- The non-profit's state of operation has been legally reported as MA.
- According to the latest filing, the non-profit's address in 2019 is 35 VILLAGE ROAD, MIDDLETON, MA, 01949.
- The total number of employees reported by the non-profit on their form for 2019 is 0.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is $429.
- The CEO compensation package within the organization is not determined through a thorough evaluation and endorsement by a neutral source.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 12 independent voting members.
- The organization was formed in 2013.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization's financial statements were compiled or reviewed by an accountant.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $2,057 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.