Brain Recovery Project
Brain Recovery Project
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About this organization
Mission
We help children reach their full potential after brain surgery to stop seizures by initiating and funding research, providing research-based guides and web content, and providing special education advocacy and parent/school training services.
About
Effectiveness Hand Arm Bimanual Intensive Training / Teacher's College, Columbia University: Initiated three-year study to address whether hand arm bimanual intensive training is an effective means of improvement use and coordination of both arms and hands in daily living after hemispherectomy surgery.Social Skills, Memory, and Higher Cognitive Function/California Institute of Technology, Fuller Theological Seminary: Initiated one-year study addresses the social skills, memory impairment, and issues with higher cognitive function in adults years after pediatric hemispherectomy surgery.Rochester Institute of Technology: Funded research to develop the design of a 3D printable hand exoskeleton for children born with hemiparesis or who have upper extremity hemiparesis due to stroke, brain injury, or epilepsy surgery.Intensive Mobility Training/Cortical Mapping: Partially funded rehabilitation training as part of UCLA study on cortical mapping post-hemispherectomy.Outpatient Post-Hemispherectomy Rehabilitation Programs: Initiated intensive physical therapy in Los Angeles County, California;Website: Designed and populated new website.Special Education Advocacy and Training: We help parents navigate the special education maze by providing free advocacy services for 20 hours. Thereafter, we charge $75 per hour for advocacy services. We also train parents and school teams on the educational impact of various brain surgeries to stop seizures. This includes writing and disseminating allied publications and guides.Parent and Professional Information: We have expanded our reach beyond hemispherectomy surgery to all brain surgeries that are used to stop seizures in children. This includes providing detailed information in the form of web content and guides.
Interesting data from their 2020 990 filing
The filing specifies the mission of the non-profit as “We help children reach their full potential after brain surgery to stop seizures by initiating and funding research, providing research-based guides and web content, and providing special education advocacy and parent/school training services.”.
When explaining its duties, they were described as: “We help children reach their full potential after brain surgery to stop seizures by initiating and funding research, providing research-based guides and web content, and providing special education advocacy and parent/school training services.”.
- The state in which the non-profit is authorized to operate legally is CA.
- According to the filing, the address of the non-profit for the year 2020 is 969 Colorado Boulevard 101, Los Angeles, CA, 90041.
- The non-profit has reported 0 employees on their form for the year 2020.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is $46,020.
- The CEO compensation strategy within the organization is determined through a thorough evaluation and endorsement by an independent source.
- The organization has 4 independent voting members.
- The organization was formed in 2011.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $33,600 in salary, compensation, and benefits to its employees.
- The organization pays $10,572 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
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