The Joe Martin Als Foundation
The Joe Martin Als Foundation
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About this organization
Mission
The Joe Martin ALS Foundation’s mission is to empower families as they face the challenge of living actively with ALS by providing home care and other services at no cost.
About
The Joe Martin ALS Foundation provides respite care at no cost for ALS patients. This includes getting patients out of bed, dressing, bathing, eating and starting a productive day. Respite care relieves the patient's family members of these responsibilities and allows the primary caregivers to take a break or attend to their own needs. The average number of families served for the year is 13 per week, with 6 hours per week for each family. Therefore, approximately 4,056 hours of respite care was provided at no cost to ALS patients.
Interesting data from their 2020 990 filing
The non-profit's aim, as stated in the filing, is “The purpose of the foundation is to provide service to individuals living with amyotrophic lateral sclerosis als, also called lou gehrig's disease, and their families by providing homecare aides who will i assist als patients with daily living activities such as getting in and out of bed, eating, showering and dressing for the day ii provide exercise sessions designed to improve blood circulation, reduce swelling, prevent contracture, blood clots and the loss of bone density iii respite care to provide family members of als patients the opportunity to attend to their own needs iv train family members and als patients to use various equipment and devices designed to enable als patients to communicate v loan assistive devices to als patients vi provide transportation for als patients vii provide als patients and their families assistance with travel planning and other activities that become much more difficult when a family member has als. the foundation provides these services without c”.
When referring to its actions, they were outlined as: “The purpose of the foundation is to provide service to individuals living with amyotrophic lateral sclerosis als, also called lou gehrig's disease, and their families by providing homecare aides who will i assist als patients with daily living activities such as getting in and out of bed, eating, showering and dressing for the day ii provide exercise sessions designed to improve blood circulation, reduce swelling, prevent contracture, blood clots and the loss of bone density iii respite care to provide family members of als patients the opportunity to attend to their own needs iv train family members and als patients to use various equipment and devices designed to enable als patients to communicate v loan assistive devices to als patients vi provide transportation for als patients vii provide als patients and their families assistance with travel planning and other activities that become much more difficult when a family member has als. the foundation provides these services without c”.
- The non-profit has complied with legal obligations by reporting their state of operation as NC.
- The non-profit's address in 2020 is noted in the filing as 100 N Tryon Street, Charlotte, NC, 28202.
- The non-profit's form for 2020 reports a total of 8 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $50,461.
- The CEO compensation package within the organization is not established through a review and approval by a neutral party.
- The organization has 9 independent voting members.
- The organization was formed in 2007.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $194,632 in salary, compensation, and benefits to its employees.
- The organization pays $37,795 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has fundraising events.