Illinois Spina Bifida Association
Illinois Spina Bifida Association
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About this organization
Mission
Works to improve the quality of life of children, adults and families living with spina bifida.
About
Promote skills development and independence. ISBA's Able Savers Program launched in 2018 to promote workforce development among adults with spina bifida and to publicize able accounts, which help people with disabilities to save while preserving their SSI and Medicaid. With generous in-kind support from statewide Kiwanis clubs and the Shirley Ryan AbilityLab, ISBA held its fourth annual GoBabyGo workshop. Over four years, 52 children have received custom electric ride-on cars to empower independent mobility. GoBabyGo is a program of the University of Delaware. ISBA is proud to be in association with the YMCA of Metro Chicago in providing Camp Independence experiences for children, teens, and adults. Through programming and evaluation conducted by the Loyola University Chicago Psychology Department, parents and campers report improvements in campers' goal attainment, management of health-related self-care, and independence.
Interesting data from their 2020 990 filing
The filing clearly states the mission of the non-profit as “An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. isba works to accomplish its mission with a three-part program strategy below.”.
When outlining its functions, they were explained as: “Works to improve the quality of life of children, adults and families living with spina bifida.”.
- In compliance with legal regulations, the non-profit has reported their state of operation as IL.
- The filing records the non-profit's address for 2020 as 2211 NORTH OAK PARK AVENUE, CHICAGO, IL, 60707.
- As of 2020, the non-profit's form reports a total of 8 employees.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $31,251.
- The organization has 12 independent voting members.
- The organization was formed in 1969.
- The organization pays $154,344 in salary, compensation, and benefits to its employees.
- The organization pays $34,074 in fundraising expenses.