Muscular Dystrophy Association
Muscular Dystrophy Association
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About this organization
Mission
MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion to accelerate the discovery of therapies and cures. We support the largest network of multidisciplinary clinics at more than 150 top medical institutions, serve the community with one-on-one specialized support, and offer educational conferences, events, and materials for families and healthcare providers. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families.
About
Health care and community services: MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion to accelerate the discovery of therapies and cures. We support the largest network of multidisciplinary clinics at more than 150 top medical institutions, serve the community with one-on-one specialized support, and offer educational conferences, events, and materials for families and healthcare providers. Each of our MDA care centers offers individuals and families best-in-class, comprehensive care from an integrated multidisciplinary team of healthcare specialists conveniently sited at one location. In a single day, patients can see multiple healthcare providers who work together to ensure coordinated individual care for every patient to best fit their specific needs. Highly trained MDA care specialists serve as an important part of the care team, helping families navigate the health system, answering questions, distributing MDA educational materials, coordinating MDA services, and assisting with community resource referrals. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families. Each camp is staffed with dedicated health professionals and trained camp volunteers who meet the medical and physical needs of each camper all at no cost to families.
Interesting data from their 2019 990 filing
The filing specifies the mission of the non-profit as “The muscular dystrophy association (mda) is committed to transforming the lives of people with muscular dystrophy, als, and related neuromuscular diseases through innovations in science and innovations in care.”.
When explaining its duties, they were described as: “The muscular dystrophy association (mda) is committed to transforming the lives of people with muscular dystrophy, als, and related neuromuscular diseases through innovations in science and innovations in care.”.
- The state in which the non-profit is authorized to operate legally is NY.
- According to the filing, the address of the non-profit for the year 2019 is 161 N CLARK ST NO 3550, CHICAGO, IL, 60601.
- The non-profit has reported 913 employees on their form for the year 2019.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $2,860,521.
- The organization has 19 independent voting members.
- The organization was formed in 1950.
- The organization pays $49,730,603 in salary, compensation, and benefits to its employees.
- The organization pays $16,230,816 in fundraising expenses.