Friends of Karen, Inc.
Friends of Karen, Inc.
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About this organization
Mission
The mission of Friends of Karen is to provide emotional, financial and advocacy support for children with a life-threatening illness and their families in order to help keep them stable, functioning, and able to cope. Friends of Karen serves families living in the New York tri-state region and offers its lifeline of support services at no cost to them so they have more time for what's most important: each other. Friends of Karen, which provides culturally sensitive, individually tailored support to meet the needs of each family, has received top ratings from Charity Navigator, and meets the 20 Standards of Charity Accountability of the BBB of Metropolitan New York.
About
Family support program - In 2018, Friends of Karen provided emotional, financial and practical, day-to-day support for 1,500 children with cancer and other life-threatening illnesses and their siblings (and parents). Children and their families were referred to Friends of Karen from 17 major hospitals in New York, New Jersey and Connecticut where children are treated in the pediatric oncology or transplant unit. Friends of Karen embraces the needs of the whole family which is affected deeply by the child's diagnosis. Its comprehensive services, including special support for siblings (one-on-one sessions provided for 193 siblings in 2018), are provided at no cost to families. Friends of Karen is a program that exemplifies the current standards of care for children with life-threatening illnesses. Friends of Karen's gift program offered birthday and holiday gifts to ill children and their siblings, as well as school supplies and other items year-round. In 2018, Friends of Karen fulfilled the holiday wishes of 890 children, and distributed back-to-school backpacks and supplies to 725 children, as well as birthday gifts to 753 children. The organization provided Thanksgiving and holiday meals and supermarket gift cards and emergency funds for food year round to the neediest families.
Interesting data from their 2019 990 filing
The non-profit's mission, as described in the filing, is “Friends of karen, inc. provides vital and comprehensive support to new york tri-state region families caring for a child battling cancer or another life-threatening illness, from diagnosis through treatment. to ease the overwhelming challenges of a devastating illness, support may encompass financial assistance, illness, education, and supportive counseling, including payment of medical expenses for hospitals, lab fees, equipment and treatment not covered by insurance; covering basic living expenses (food, rent, utilities) if there is loss of income directly resulting from a child's illness; a support program for sisters and brothers of the ill child to help them better understand the dramatic changes in the family caused by the illness; referrals to other agencies or government programs to make sure the family receives available care and help; advocacy action with issues concerning medical treatment, insurance and education; bereavement support for parents and siblings during end of l”.
When describing its duties, they were characterized as: “Provides emotional, financial & advocacy support for children with life-threatening illnesses & their families, in order to help keep them stable, functioning, and able to cope.”.
- The non-profit has complied with legal regulations by reporting their state of operation as NY.
- The filing shows that the non-profit's address as of 2019 is 118 Titicus Road, North Salem, NY, 10560.
- As of 2019, the non-profit has reported a total of 36 employees on their form.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$394,108.
- The compensation of the CEO of the organization is subject to review and approval by an independent body.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 20 independent voting members.
- The organization was formed in 1979.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule J.
- The organization is required to file Schedule O.
- The organization pays $2,068,677 in salary, compensation, and benefits to its employees.
- The organization pays $589,670 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization's financial statements were reviewed by an accountant.