Ehlers-Danlos Research Foundation
Ehlers-Danlos Research Foundation
Want to make a donation using Daffy?
Lower your income taxes with a charitable deduction this year when you donate to this non-profit via Daffy.
Do you work for Ehlers-Danlos Research Foundation? Learn more here.
By donating on this page you are making an irrevocable contribution to Daffy Charitable Fund, a 501(c)(3) public charity, and a subsequent donation recommendation to the charity listed above, subject to our Member Agreement. Contributions are generally eligible for a charitable tax-deduction and a yearly consolidated receipt will be provided by Daffy. Processing fees may be applied and will reduce the value available to send to the end charity. The recipient organizations have not provided permission for this listing and have not reviewed the content.
Donations to organizations are distributed as soon as the donation is approved and the funds are available. In the rare event that Daffy is unable to fulfill the donation request to this charity, you will be notified and given the opportunity to choose another charity. This may occur if the charity is unresponsive or if the charity is no longer in good standing with regulatory authorities.
About this organization
Mission
EDSRF improves care of people with EDS / HSD and related disorders by (i) advancing innovative research on treatment modalities, efficacy, and delivery and (ii) educating healthcare providers across disciplines on the diagnosis and management of this patient population.
About
Ehlers-Danlos Syndromes (EDS) are heritable disorders in which the body’s connective tissue lacks structural integrity. People with EDS suffer from a range of systemic problems, including widespread pain, frequent joint subluxations or dislocations, and gut and nervous system dysfunction. If untreated, EDS can be highly limiting — even disabling. Current estimates suggest 1 of every 2500-5000 people has EDS; since misdiagnosis is common, we believe the actual number is much higher. In addition to struggling to get a diagnosis, people with EDS often lack access to proven, affordable treatments.