Jordan Avi Ogman Foundation Inc.
Jordan Avi Ogman Foundation Inc.
Want to make a donation using Daffy?
Lower your income taxes with a charitable deduction this year when you donate to this non-profit via Daffy.
Do you work for Jordan Avi Ogman Foundation Inc.? Learn more here.
By donating on this page you are making an irrevocable contribution to Daffy Charitable Fund, a 501(c)(3) public charity, and a subsequent donation recommendation to the charity listed above, subject to our Member Agreement. Contributions are generally eligible for a charitable tax-deduction and a yearly consolidated receipt will be provided by Daffy. Processing fees may be applied and will reduce the value available to send to the end charity. The recipient organizations have not provided permission for this listing and have not reviewed the content.
Donations to organizations are distributed as soon as the donation is approved and the funds are available. In the rare event that Daffy is unable to fulfill the donation request to this charity, you will be notified and given the opportunity to choose another charity. This may occur if the charity is unresponsive or if the charity is no longer in good standing with regulatory authorities.
About this organization
Mission
The goal of the Jordan Avi Ogman Foundation is to raise awareness and funds for a treatment and cure for TECPR2, a rare, fatal disease. Jordan is a rare disease warrior who is determined, resilient, bright and just the sweetest and funniest little boy. We can’t and won’t lose him to TECPR2.
About
Saving the lives of Jordan and the other children with TECPR2 can potentially lead to breakthroughs for other neurodegenerative diseases of the brain. TECPR2 and many well-known neurodegenerative diseases of the brain—such as ALS, Parkinson’s disease, and Alzheimer’s-are suspected to share a commonality of failure, impairment, and/or abnormalities of the autophagy (the body’s way of cleaning out damaged cells in order to regenerate newer, healthier cells) process. It is excruciatingly painful to know that there is an autophagy impairment occurring in our sweet 5 year old son’s brain and central nervous system.