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Pulmonary Fibrosis Foundation
Pulmonary Fibrosis Foundation
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About this organization
Mission
The Pulmonary Fibrosis Foundation mobilizes people and resources to provide access to high quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives.
About
PFF Patient Registry: Total revenue recognized for the program was $2,685,985, which included contributions and sponsorships of $196,000 in addition to the program service revenue of $2,489,985. The PFF Patient Registry (Registry) is a research-focused collaborative effort that will bring together multiple stakeholders including patients, health care providers, and researchers to advance research and improve the quality of life of patients with pulmonary fibrosis. (Continued on Schedule O)
Interesting data from their 2020 990 filing
The filing reveals the mission of the non-profit as “To mobilize people and resources to provide access to high-quality care and lead research for a cure so that people with pulmonary fibrosis will live longer, healthier lives.”.
When detailing its functions, they were listed as: “To mobilize people and resources to provide access to high-quality care and lead research for a cure so that people with pulmonary fibrosis will live longer, healthier lives.”.
- According to the law, the state where the non-profit operates has been reported as CO.
- The filing specifies that the non-profit's address in 2020 was 230 E Ohio Street Suite 500, Chicago, IL, 606113270.
- As of 2020, the non-profit's form shows they have a total of 40 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $1,960,501.
- The CEO compensation scheme within the organization is based on a review and endorsement process by a neutral entity.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 11 independent voting members.
- The organization was formed in 2000.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule J.
- The organization is required to file Schedule O.
- The organization engages in lobbying activities.
- The organization pays $3,585,863 in salary, compensation, and benefits to its employees.
- The organization pays $1,190,480 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.
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