Esophageal Cancer Action Network Inc.
Esophageal Cancer Action Network Inc.
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About this organization
Mission
SAVING LIVES BY RAISING AWARENESS ABOUT THE LINK BETWEEN HEARTBURN AND CANCER.
About
AMONG ECAN'S ACCOMPLISHMENTS: CRITICAL RESEARCH: ECAN SUCCESSFULLY ADVOCATED WITH THE NATIONAL CANCER INSTITUTE TO CHANGE COURSE AND INCLUDE ESOPHAGEAL CANCER IN ITS GENOME MAPPING PROJECT KNOWN AS THE CANCER GENOME ATLAS (TCGA). THE GROUNDBREAKING FINDINGS OF THAT RESEARCH WERE PUBLISHED IN THE JOURNAL NATURE IN JANUARY OF 2017, CREATING A ROADMAP TO EFFECTIVE TREATMENT OF ESOPHAGEAL CANCER.IN 2018, ECAN LAUNCHED A FUNDRAISING CAMPAIGN THAT WOULD PROVIDE THE NECESSARY RESOURCES FOR ECAN TO LEAD A DRIVE TO ADVOCATE FOR THE INCLUSION OF ESOPHAGEAL CANCER IN THE US DEPARTMENT OF DEFENSE'S PEER-REVIEWED CANCER RESEARCH PROGRAM (PRCRP). THIS MULTI-MILLION-DOLLAR PROGRAM PROVIDES MEDICAL RESEARCH FUNDING FOR MEDICAL RESEARCHERS IN SELECT CANCERS. ESOPHAGEAL CANCER HAS NEVER BEEN INCLUDED IN THIS PROGRAM. EVEN THOUGH ESOPHAGEAL CANCER ACCOUNTS FOR 2.6% OF CANCER DEATHS IN THE US, IT ONLY RECEIVES % OF THE FEDERAL CANCER RESEARCH BUDGET. THAT MAKES INCLUSION IN THE PRCRP WHICH IS CONTROLLED BY THE U.S. CONGRESS OF PRIMARY IMPORTANCE. IN 2018, ECAN SUCCESSFULLY RAISED THE $50,000 NEEDED TO FUND THIS EFFORT, WHICH IS SET TO BEGIN IN EARLY 2019.IN 2018, ECAN ALSO LAUNCHED A PARTNERSHIP WITH BRISTOL-MYERS SQUIBB TO INCREASE AWARENESS ABOUT CLINICAL TRIALS AMONG PATIENTS WITH ESOPHAGEAL CANCER. THIS PARTNERSHIP DOVETAILS WITH ECAN'S NEW ONLINE CLINICAL TRIAL PORTAL DESIGNED TO HELP ESOPHAGEAL CANCER PATIENTS UNDERSTAND HOW TO ACCESS CLINICAL TRIALS AND PROVIDE AN EASY-TO-USE SEARCH PLATFORM TO DISCOVER TRIALS FOR WHICH THEY MAY QUALIFY.ECAN ALSO HAS A PRESENCE AT THE MEETINGS OF RESEARCHERS IN THE BARRETT'S ESOPHAGUS TRANSLATIONAL RESEARCH NETWORK (BETRNET) OF THE NATIONAL CANCER INSTITUTE, BRINGINGPATIENT PERSPECTIVES TO DISCUSSIONS OF CRITICAL SCIENTIFIC EFFORTS. AS A FOUNDING MEMBER OF THE DEADLIEST CANCERS COALITION, ECAN STRIVES TO ENSURE ADEQUATE FUNDING FOR RESEARCH INTO THE PREVENTION, DETECTION, TREATMENT AND CURE OF ESOPHAGEAL CANCER. ECAN IS ALSO A FOUNDING MEMBER OF THE GI CANCERS ALLIANCE WHICH IS A COALITION OF NONPROFIT ORGANIZATIONS AND INDUSTRY REPRESENTATIVES THAT STRIVES TO INCREASE PUBLIC UNDERSTANDING OF ALL CANCERS AFFECTING THE DIGESTIVE TRACK.A GUIDE FOR PATIENTS: WITH INPUT FROM PHYSICIANS AROUND THE COUNTRY,ECAN DEVELOPED AN INNOVATIVE GUIDE FOR PATIENTS PROVIDING COMPREHENSIVEAND CLEAR INFORMATION ABOUT THE LINK BETWEEN HEARTBURN AND CANCER. THEGUIDE IS DESIGNED TO HELP PATIENTS ADVOCATE FOR THEIR OWN HEALTH CAREAND IS AVAILABLE AS A FREE DOWNLOAD FROM THE ECAN WEBSITE IN BOTHENGLISH AND SPANISH. ECAN HAS DISTRIBUTED MORE THAN 30,000 HARD COPIESOF THE GUIDE AND MORE THAN 300,000 POSTCARDS AND BOOKMARKS LISTING THERISK FACTORS IDENTIFIED IN THE GUIDE AND A LINK TO THE DOWNLOAD PAGE.ECAN CONVENED A COMMITTEE OF TOP MEDICAL PROFESSIONALS TODEVELOP AN UPDATE TO THE GUIDE WHICH ECAN EXPECTS TO RELEASE IN 2020. ESOPHAGEAL CANCER AWARENESS MONTH: ECAN LED THE EFFORT TO HAVE APRILDESIGNATED AS ESOPHAGEAL CANCER AWARENESS MONTH IN STATES THROUGHOUTTHE NATION. WITH ECAN'S SUPPORT OVER THE PAST 9 YEARS, MORE THAN160 GUBERNATORIAL DECLARATIONS OF EC AWARENESS MONTH HAVE BEEN ACHIEVEDTHROUGHOUT THE COUNTRY AND IN SOME OTHER NATIONS, AS WELL. APRIL IS NOWOBSERVED AS EC AWARENESS MONTH BY COMPANIES, ORGANIZATIONS AND GOVERNMENTS ACROSS THE NATION - AND THE WORLD. ECAN'S FREE REACH OUT KITS FOR EC AWARENESS MONTH HAVE SHARED A LIFE-SAVING MESSAGE WITH SEVERAL MILLION INDIVIDUALS IN THE PAST NINE YEARS.LEGENDARY PARTNERSHIP: ECAN HAS PARTNERED WITH THE ESTATE OF FILM ICONHUMPHREY BOGART WHOSE LIFE WAS CUT SHORT IN 1957 BY ESOPHAGEAL CANCER.THE ESTATE OF HUMPHREY BOGART PARTNERED WITH ECAN TO CREATE A PUBLIC SERVICE CAMPAIGN. CALLED SCREENINGS FOR SCREENINGS. THE PROJECT FEATURES MOVIE TRAILERS PRODUCED BY ECAN AND PRESENTED BEFORE EACH FILM SHOWN AT THE HUMPHREY BOGART FILM FESTIVAL. IN THOSE VIDEOS, BOGART'S SON STEPHEN ENCOURAGES THOSE AT RISK FOR ESOPHAGEAL CANCER TO "GET CHECKED."EVENTS THAT MAKE A DIFFERENCE: ECAN SPONSORS AND SUPPORTS MULTIPLEFUNDRAISING AND AWARENESS RAISING EVENTS AROUND THE COUNTRY INCLUDINGWALKS, RUNS, BIKE RIDES, GOLF TOURNAMENTS, DINNERS, LIBRARY OUTREACH,SPEAKING EVENTS, ART SHOWS AND MORE. ECAN VOLUNTEERS HAVE HOSTED MORETHAN 100 EVENTS TO RAISE AWARENESS ACROSS THE U.S. AND IN OTHERCOUNTRIES SINCE 2010. TAKING STEPS TO SAVE LIVES: IN 2018, ECAN RAISED AWARENESS AND BUILT STRONGER COMMUNITY INVOLVEMENT BY HOSTING EIGHT STEPS TO SAVE LIVES 5K EVENTS IN BROOKLYN, NEW YORK, WASHINGTON, D.C., CENTRAL NEW JERSEY, ATLANTA, GEORGIA, PHILADELPHIA, PENNSYLVANIA, NEW YORK CITY, NEW YORK, LONG ISLAND, NEW YORK AND LOS ANGELES, CALIFORNIA.MAJOR LEAGUES & MAJOR CITIES: IN APRIL 2014, ECAN PRESENTED THE FIRST ESOPHAGEAL CANCER AWARENESS EVENT IN PROFESSIONAL SPORTS AT THE STAPLES CENTER WHEN THE NBA'S LOSANGELES CLIPPERS TOOK ON THE DALLAS MAVERICKS. LATER THAT MONTH, ECANSPONSORED THE FIRST ESOPHAGEAL CANCER AWARENESS RACE EVER HELD IN NEWYORK CITY; MORE THAN 1,000 ATTENDED THE TWO-DAY FESTIVAL THAT INCLUDEDA 5K, 10K AND HALF MARATHON.CANCER DANCER GALA ~ TAKING STEPS TO SAVE LIVES :IN APRIL 2012, ECAN HOSTED THE FIRST GALA EVER HELD IN THE U.S. TOFOCUS ON ESOPHAGEAL CANCER ADVOCACY. FORMER CONGRESSWOMAN AND UNDERSECRETARY OF STATE ELLEN O. TAUSCHER MOVED THE CROWD OF 300 WITH HERSTORY OF SURVIVAL OF STAGE III ESOPHAGEAL CANCER. IN 2013, THE CANCERDANCER GALA ATTRACTED A LARGER AUDIENCE AND RAISED MORE THAN $110,000TO SUPPORT ECAN'S MISSION. IN 2014, THE CANCER DANCER GALA WENTHOLLYWOOD WITH MORE THAN 300 GUESTS AND REMARKS BY ECAN SPOKESMANSTEPHEN BOGART.SERIOUSLY FUNNY:IN 2015, ECAN LAUNCHED ITS NO LAUGHING MATTER CAMPAIGN, A PUBLIC AWARENESS EFFORT THAT USES HUMOR TO HELP FOLKS UNDERSTAND THAT REFLUX DISEASE IS A SERIOUS CONDITION. THE HIGHLIGHT OF THE CAMPAIGN WAS AN EVENING WITH JEFF FOXWORTHY IN ARLINGTON, VIRGINIA THAT BROUGHT A NEW AUDIENCE TO OUR MESSAGE AND ENTERTAINED OUR SUPPORTERS WITH AHILARIOUSLY ENTERTAINING EVENING. LEADING UP TO THE EVENT, ECAN HOSTED COMPETITIONS IN COMEDY CLUBS IN EIGHT CITIES THROUGHOUT THE US FOR THE CHANCE TO BE THE OPENING ACT FOR JEFF FOXWORTHY.REACHING FOR THE STARS:ECAN TOOK AWARENESS TO NEW HEIGHTS IN 2015 WITH ITS STORIES TO SAVE LIVES EVENT IN LOS ANGELES. MORE THAN 40 BRAVE PARTICIPANTS RAPPELLED DOWN 24 STORIES OF THE HILTON UNIVERSAL CITY HOTEL ON BEHALF OF SOMEONE WHO HAS FACED ESOPHAGEAL CANCER. TWO RAPPELLERS WERE EC SURVIVORS AND A THIRD WAS A PATIENT BATTLING ESOPHAGEAL CANCER. THIS FUN AND MOVING DAY DELIVERED A STRONG MESSAGE ABOUT THE IMPORTANCE OF EARLY DETECTION AND TAKING REFLUX DISEASE SERIOUSLY.CHARM CITY CELEBRITY GAME NIGHT: IN 2016, ECAN BROUGHT TOGETHER 24 BROADCAST CELEBRITIES FROM THE BALTIMORE TV AND RADIO MARKET TO PLAY A FUN AND ENGAGING BALTIMORE VERSION OF HOLLYWOOD GAME NIGHT. EVEN MORE IMPORTANTLY, THE EVENING HONORED THE MEMORY OF A BELOVED NEWSCASTER WHOSE LIFE WAS CUT SHORT BY ESOPHAGEAL CANCER JERRY TURNER OF WJZ-TV.STRIVING FOR WIDESPREAD AWARENESS: IN MAY OF 2017, ECAN FILED A CITIZEN PETITION WITH THE FOOD AND DRUG ADMINISTRATION ASKING THAT A WARNING LABEL BE PLACED ON ALL HEARTBURNREMEDIES SOLD OVER-THE-COUNTER. ECAN REQUESTED A WARNING THAT READS "PERSISTENT HEARTBURN CAN BE A SIGN THAT YOU ARE AT RISK FOR ESOPHAGEAL CANCER. THIS MEDICATION WILL NOT ELIMINATE THAT RISK." IN CONJUNCTION WITH THAT FILING, ECAN COMMISSIONED A PUBLIC RESEARCH POLL TO DETERMINE HOW MANY AMERICANS UNDERSTAND THAT REFLUX DISEASE CAN LEAD TO CANCER. OUR STUDY DISCOVERED THAT ONLY 14% OF AMERICANS UNDERSTOOD THAT RISK. BY UNDERTAKING THE PETITION EFFORT, ECAN SOUGHT TO CREATE AN IMPORTANT CHANGE, BUT IT ALSO HAD A MAJOR OPPORTUNITY TO RAISE PUBLIC AWARENESS OF THE LINK BETWEEN HEARTBURN AND CANCER. ECAN MADE THE BEST USE OF THAT OPPORTUNITY THROUGH MEDIA OUTREACH THROUGHOUT THE NATION. ECAN'S FDA PETITION AND MARKET RESEARCH FINDINGS GARNERED NEWS COVERAGE BY MORE THAN 33 NATIONAL NEWS OUTLETS AND 17 LOCAL NEWS OUTLETS INCLUDING MARKETS LIKE NEW YORK, CHICAGO, LOS ANGELES, PHILADELPHIA, ATLANTA, HOUSTON, AND BALTIMORE, REACHING MILLIONS OF AMERICANS WITH A WARNING THAT REFLUX DISEASE CAN LEAD TO CANCER. ECAN ALSO PUBLISHED AN ONLINE PETITION THAT ATTRACTED MORE THAN 600 SIGNATURES FROM INDIVIDUALS WHOSE FAMILIES HAVE BEEN AFFECTED BY ESOPHAGEAL CANCER. IN OCTOBER 2018, THE FDA REJECTED ECAN'S PETITION, ISSUING A LENGTHY OPINION WHICH PROVIDES GUIDANCE ABOUT THE TYPE OF EVIDENCE ECAN WOULD BE REQUIRED TO PROVIDE IN ORDER TO BE SUCCESSFUL IN REFILING THE PETITION. ECAN PLANS TO FILE THE PETITION AGAIN IN THE FUTURE WITH RESEARCH BASED UPON THE FDA OPINION.
Interesting data from their 2020 990 filing
The filing reveals the mission of the non-profit as “Ecan's mission is to save lives by raising awareness about the link between heartburn and cancer, promoting early detection, supporting medical innovation to prevent, detect, treat and cure esophageal cancer and link patients and families to compassionate support.”.
When detailing its functions, they were listed as: “Saving lives by raising awareness about the link between heartburn and cancer.”.
- According to the law, the state where the non-profit operates has been reported as MD.
- The filing specifies that the non-profit's address in 2020 was PO BOX 243, STEVENSON, MD, 21153.
- As of 2020, the non-profit's form shows they have a total of 6 employees.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is $32,694.
- The organization has 17 independent voting members.
- The organization was formed in 2010.
- The organization pays $196,938 in salary, compensation, and benefits to its employees.
- The organization pays $29,736 in fundraising expenses.