Trisomy 18 Support Inc.
Trisomy 18 Support Inc.
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About this organization
Mission
Trisomy 18 Foundation is dedicated to accelerating research into the causes and treatments of Trisomy 18, and supporting all families impacted by a Trisomy 18 diagnosis.
About
Education and support programs: Trisomy 18's nationally-recognized program supports and educates both patient families and medical providers who treat families and children with Trisomy 18 though direct service calls to support program staff, workshops, public presentations, educational materials and technology enabled peer support programs. The research advocacy and public engagement program: This program supports constituent engagement in the research and health policy-making process at federal and state level on legislative and regulatory initiatives that impact the lives of families and their children with Trisomy 18. This program involves and engages the public in national awareness campaigns to support our cause to make Trisomy 18 a preventable and treatable condition so that less families lose their precious newborns and infants to this condition. Volunteers are supported in hosting special awareness and fundraising events benefitting the foundation in locations across the United States. These events help develop and expand philanthropic partnerships to accelerate progress toward treatments and improved health outcomes for children impacted by Trisomy 18 diagnosis.
Interesting data from their 2020 990 filing
From their filing, the objective of the non-profit is stated as “Trisomy 18 foundation is dedicated to accelerating research into the causes and treatments of trisomy 18, and supporting all families impacted by a trisomy 18 diagnosis.”.
When talking about its functions, they were outlined as: “Trisomy 18 foundation is dedicated to accelerating research into the causes and treatments of trisomy 18, and supporting all families impacted by a trisomy 18 diagnosis.”.
- The legally reported state of operation for the non-profit is VA.
- According to the filing, the non-profit's address in 2020 is 4491 CHESHIRE STATION PLAZA STE 157, DALE CITY, VA, 22193.
- The non-profit organization as of 2020 has a total of 2 employees reported on their form.
- Is not a private foundation.
- Expenses are between $100,000 and $250,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is $36,595.
- The organization has 5 independent voting members.
- The organization was formed in 2003.
- The organization pays $80,674 in salary, compensation, and benefits to its employees.
- The organization pays $8,667 in fundraising expenses.