Apfed
Apfed
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About this organization
Mission
See Schedule O
About
Education, awareness, advocacy, and support: APFED hosted our annual patient education and awareness conference, EOS Connection. We worked with the FDA and stakeholders to organize and host a Hypereosinophilic Syndrome patient focused drug development conference. APFED worked with the CDC to propose and justify new ICD-10 codes for rare eosinophilic diseases. APFED continues to advocate for medical foods coverage. We continue to develop and expand educational materials and the e-learning center. We developed, published, and distributed HES and EoE toolkits, and a new top-6 free cookbook. Started an initiative to educate and assist teens with transition and transfer of care to the adult healthcare setting. We continued distribution of education materials to healthcare providers on eosinophilic disorders and developed materials for grade school education. APFED actively participates in National Eosinophilic Awareness Week.
Interesting data from their 2020 990 filing
The non-profit's aim, as stated in the filing, is “See schedule o”.
When referring to its actions, they were outlined as: “See schedule o”.
- The non-profit has complied with legal obligations by reporting their state of operation as TX.
- The non-profit's form for 2020 reports a total of 3 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is -$150,375.
- The CEO compensation package within the organization is not established through a review and approval by a neutral party.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 11 independent voting members.
- The organization was formed in 2001.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $129,777 in salary, compensation, and benefits to its employees.
- The organization pays $15,883 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.
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