Angelman Syndrome Foundation Inc
Angelman Syndrome Foundation Inc
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About this organization
Mission
Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy, and support for individuals with Angelman Syndrome, their families, and other concerned parties.
About
The foundation provides educational tools, information and support to individuals concerned with those affected by Angelman Syndrome. The foundation supports and funds AS-specific research to find viable therapeutics and a cure for AS.
Interesting data from their 2020 990 filing
The filing sets forth the mission of the non-profit as “The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome. the foundation supports and funds basic science research and clinical trials.”.
When detailing its responsibilities, they were listed as: “The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome. the foundation supports and funds basic science research and clinical trials.”.
- The state in which the non-profit is legally permitted to operate is FL.
- The address of the non-profit for 2020 according to the filing is 12995 STAR DR, FISHERS, IN, 46037.
- The number of employees reported by the non-profit on their form as of 2020 is 7.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Has foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $467,947.
- The CEO compensation structure within the organization is based on a review and approval from a neutral party.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 15 independent voting members.
- The organization was formed in 1992.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $359,332 in salary, compensation, and benefits to its employees.
- The organization pays $442,809 in fundraising expenses.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.
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