The International Waldenstroms Macroglobulinemia Foundation Inc
The International Waldenstroms Macroglobulinemia Foundation Inc
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About this organization
Mission
Support everyone affected by Waldenstrom's macroglobulinemia while advancing the search for a cure.
About
Provided 24 grant payments towards 11 different grants to further research in Waldenstrom's macroglobulinemia development of targeted therapies, targeting the tumor microenvironment, development of the role of hypoxia, large scale genomic and proteomic profiling, factors regulating immunoglobulin-producing B-cells, identification of germline and somatic variants associated with predisposition of Waldenstrom's macroglobulinemia, further genomic characterization of Waldenstrom's macroglobulinemia, unveiling the role of the CXCR4 somatic mutation, a crucial regulator of pathogenesis and important target for therapy.
Interesting data from their 2020 990 filing
The filing specifies the mission of the non-profit as “Mission objectives: (a) offer mutual support and encouragement to the waldenstrom's macroglobulinemia community and others with an interest in the disease, (b) to provide information and educational programs that address patients and caregivers' concerns and (c) to provide and support research leading to better treatments and ultimately a cure.”.
When explaining its duties, they were described as: “Our vision is to support everyone affected by waldenstrom's macroglobulinemia while advancing the search for a cure. support is given through publications, hot line support, and an educational forum. the organization also provides research grants to encourage and support research for treatments and ultimately a cure.”.
- The state in which the non-profit is authorized to operate legally is FL.
- According to the filing, the address of the non-profit for the year 2020 is PO BOX 2840, BINGHAMTON, NY, 13902.
- The non-profit has reported 7 employees on their form for the year 2020.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$375,835.
- The organization has 14 independent voting members.
- The organization was formed in 1998.
- The organization pays $470,818 in salary, compensation, and benefits to its employees.
- The organization pays $396,237 in fundraising expenses.