The Myositis Association
The Myositis Association
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About this organization
Mission
To improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy.
About
The Myositis Associations Annual Patient Conference is TMAs flagship program and is the leading international program for all of those in the myositis community. World-renown myositis experts and researchers serve as faculty for the conference and meet with patients and care partners from around the world. Attendees learn about the latest clinical evidence, myositis research and therapies as well as future predictions for those who live with myositis diseases. Myositis patients and care partners meet others with similar experiences and challenges offering an opportunity to exchange support, hope, relevant information and coping techniques.
Interesting data from their 2020 990 filing
The purpose of the non-profit is outlined in the filing as “The myositis association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. tma provides patient education and support, advocacy, physician education, and research funding for myositis diseases. to learn more about myositis go to www.myositis.org. tmas mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy.tma accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. tma's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. among the services tma offers is an annual patient conference. this event is moved around the u.s. geographically each year to maximize the number of pa”.
When discussing its operations, they were defined as: “The myositis association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. tma provides patient education and support, advocacy, physician education, and research funding for myositis diseases. to learn more about myositis go to www.myositis.org. tmas mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy.tma accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. tma's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. among the services tma offers is an annual patient conference. this event is moved around the u.s. geographically each year to maximize the number of pa”.
- The state where the non-profit operates has been legally reported as VA.
- The filing indicates that the non-profit's address in 2020 is located at 2000 Duke Street 300, Alexandria, VA, 22314.
- The non-profit has reported 6 employees on their form as of 2020.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $177,390.
- The CEO's remuneration policy within the organization is established through an impartial review and endorsement process.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 10 independent voting members.
- The organization was formed in 1993.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule J.
- The organization is required to file Schedule O.
- The organization pays $675,778 in salary, compensation, and benefits to its employees.
- The organization pays $189,401 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.