Cure Sanfilippo Foundation
Cure Sanfilippo Foundation
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By donating on this page you are making an irrevocable contribution to Daffy Charitable Fund, a 501(c)(3) public charity, and a subsequent donation recommendation to the charity listed above, subject to our Member Agreement. Contributions are generally eligible for a charitable tax-deduction and a yearly consolidated receipt will be provided by Daffy. Processing fees may be applied and will reduce the value available to send to the end charity. The recipient organizations have not provided permission for this listing and have not reviewed the content.
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About this organization
Mission
To cure Sanfilippo. By advocating for and funding research directed towards a cure and treatment options.
About
It’s possible to cure Sanfilippo in this lifetime. Making a donation to Cure Sanfilippo Foundation turns hope into action, into research, and into clinical trials. All of that leads to a cure.
Interesting data from their 2020 990 filing
The purpose of the non-profit is outlined in the filing as “To advocate for and fund research directed towards a cure or treatment options for patients with sanfilippo syndrome”.
When discussing its operations, they were defined as: “To advocate for and fund research directed towards a cure or treatment options for patients with sanfilippo syndrome”.
- The state where the non-profit operates has been legally reported as SC.
- The filing indicates that the non-profit's address in 2020 is located at PO Box 6901, Columbia, SC, 29260.
- The non-profit has reported 3 employees on their form as of 2020.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Has foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $905,569.
- The CEO's remuneration policy within the organization is established through an impartial review and endorsement process.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 7 independent voting members.
- The organization was formed in 2013.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization's financial statements were compiled or reviewed by an accountant.
- The organization pays $286,619 in salary, compensation, and benefits to its employees.
- The organization pays $140,270 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.