The Brain Tumor Network Inc.
The Brain Tumor Network Inc.
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About this organization
Mission
Providing free treatment-related navigation services to brain tumor patients in the USA.
About
Patient navigation services are the core program of the Brain Tumor Network (BTN). With the scarcity of personalized treatment information available to individuals in the USA diagnosed with primary brain tumors, BTN provides important informational/navigation services to patients, caregivers, and care providers. Our team of nurse navigators and social workers respond to online requests and telephone inquiries to meet patients/families wherever they are in their brain tumor treatment journey, and to help them gather the information they need to explore their next steps with their healthcare providers. BTN has navigated 1,100 patients nationwide. Services provided include: conducting personalized clinical trial searches, assistance ascertaining eligibility for participation in identified trials, facilitating second opinions and consultations, identifying specialty providers near patients' home communities, and obtaining and reviewing patient records. BTN does not provide medical advice, but does provide personalized treatment-related information to equip patients and family to enter into decision-making conversations with their healthcare professionals.
Interesting data from their 2020 990 filing
The filing sets forth the mission of the non-profit as “The brain tumor network (btn) is dedicated to providing compassionate, personalized navigation services to brain tumor patients and caregivers. btn also assists healthcare providers access clinical trials for their patients. btn was launched in late 2014 by the sontag foundation in response to unmet navigation needs identified by individuals and family members of those diagnosed with primary brain tumors.”.
When detailing its responsibilities, they were listed as: “Providing free treatment-related navigation services to brain tumor patients in the usa.”.
- The state in which the non-profit is legally permitted to operate is FL.
- The address of the non-profit for 2020 according to the filing is 816 A1A NORTH STE 201, PONTE VEDRA BEACH, FL, 32082.
- The number of employees reported by the non-profit on their form as of 2020 is 15.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is -$827,025.
- The organization has 5 independent voting members.
- The organization was formed in 2013.
- The organization pays $980,630 in salary, compensation, and benefits to its employees.
- The organization pays $52,287 in fundraising expenses.