Dysautonomia International Inc
Dysautonomia International Inc
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About this organization
Mission
Dysautonomia International is the largest non-profit in the world dedicated to improving the lives of individuals living with autonomic nervous system disorders through: research, advocacy, physician education, public awareness, and patient empowerment programs. We seek to improve the lives of over 70 million individuals around the globe with disorders of the autonomic nervous system. The organization offers patient and clinician education resources, community outreach, legislative advocacy, and patient support for all autonomic disorders. Our innovative research program focuses on postural orthostatic tachycardia syndrome (POTS). Dysautonomia International continues to grow and expand upon a support infrastructure built for our patient community based on research, education, and hope.
About
Providing research funding for projects at major University Research Centers.
Interesting data from their 2019 990 filing
The purpose of the non-profit is listed in the filing as “To increase awareness of dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research.”.
When discussing its operations, they were characterized as: “To increase awareness of dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research.”.
- The non-profit's legally reported state of operation is NY.
- The filing states that the non-profit's address in the year 2019 is 67 WOODLAWN AVENUE, EAST MORICHES, NY, 11940.
- The form submitted by the non-profit for 2019 shows a total of 4 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $542,351.
- The CEO's remuneration policy within the organization is not determined through a review and approval process by a neutral source.
- The organization elects its board members.
- The organization has 5 independent voting members.
- The organization was formed in 2012.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $150,291 in salary, compensation, and benefits to its employees.
- The organization pays $56,615 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has fundraising events.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.