HealthTree Foundation
HealthTree Foundation
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About this organization
Mission
The HealthTree Foundation is a 501(c)3, non-profit organization that empowers patients with rare diseases at each step of their disease journey - from diagnosis, through education, care and on to a cure. The Foundation was founded in 2012 by multiple myeloma patient Jenny Ahlstrom.
About
Jenny Ahlstrom was diagnosed in 2010 with the rare blood cancer multiple myeloma at the young age of 43. With technology expertise, she and her husband Paul believed that patients could accelerate a cure by sharing their cancer stories and data with their peers and with the research community and launched the HealthTree Foundation in 2012. Over the course of the last decade, the HealthTree Foundation has built many patient programs and over 8 integrated software platforms to help blood cancer patients learn more about their disease and better navigate their disease. Patients can find a coach, stay updated with news in patient-friendly language, find crowdsourced side effect solutions, see personalized clinical trials and treatment options, listen to disease podcasts, join community forums and educational live and online meetings, learn from experts in HealthTree University and so much more. The wide variety of programs help patients go deep on their disease so they can become their own best advocate. With these programs and our engaged blood cancer communities of patients, families and caregivers, patients can now contribute to research in revolutionary ways. Now academic research can be performed on comprehensive data sets from thousands of patients with data that includes labs, genetics, demographics, quality of life, prior lines of therapy and more. HealthTree Cure Hub is the only tool today used in disease research that invites patients to contribute their complete longitudinal and validated real world data to academic researchers for free so that they can develop new hypotheses and gain new insights. This allows investigators to perform research in faster and less expensive ways, saving critical time for patients who are playing “beat the clock” with terminal diseases. Over the years, our team has grown significantly and we are now expanding into additional blood cancers, solid tumor cancers and other terminal diseases to bring faster cures to patients in need.
Interesting data from their 2020 990 filing
The filing outlines the non-profit's goal as “A patient-centered approach to healthcare innovation for rare cancers and orphan diseases.”.
When explaining its purpose, the activities were outlined as: “A patient-centered approach to healthcare innovation for rare cancers and orphan diseases.”.
- As per legal reporting requirements, the state of operation for the non-profit is DE.
- The non-profit's address for 2020 is listed as 3315 MAYFLOWER DR 1, LEHI, UT, 84043 in the filing.
- As per the non-profit's form, they have 9 employees as of 2020.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$354,780.
- The CEO's compensation policy within the organization is not established through a review and approval from a neutral party.
- The organization has 5 independent voting members.
- The organization was formed in 2012.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $171,109 in salary, compensation, and benefits to its employees.
- The organization pays $14,464 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has fundraising events.
- The organization has grants to organizations.
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