Li Fraumeni Syndrome Association
Li Fraumeni Syndrome Association
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About this organization
Mission
Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.
About
In 2017, LFSA organized and financially supported the first Youth Workshop held at Huntsman Cancer Institute. The workshop was created for teenagers to learn about the science of their syndrome and what the doctors and researchers are doing to make the future without LFS and most importantly to meet kids their own age for the first time with the syndrome. LFSA hosted 21 teens and their guardians from 6 different countries from around the world.
Interesting data from their 2020 990 filing
The purpose of the non-profit, as set forth in the filing, is “Li-fraumeni syndrome association, inc. provides a wide range of information, advocacy, and support services for individuals and families with li fraumeni syndrome. we support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the lfs community.”.
When discussing its purpose, they were characterized as: “Li-fraumeni syndrome association, inc. provides a wide range of information, advocacy, and support services for individuals and families with li fraumeni syndrome. we support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the lfs community.”.
- The state in which the non-profit is legally authorized to operate is MA, as reported.
- The filing confirms that the non-profit's address in 2020 was 196 Fletcher Circle, Chicopee, MA, 01020.
- The form of the non-profit reports 0 employees as of 2020.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is -$163,280.
- The organization has 10 independent voting members.
- The organization was formed in 2011.
- The organization pays $0 in salary, compensation, and benefits to its employees.
- The organization pays $1,000 in fundraising expenses.