Shwachman Diamond Syndrome Foundation Inc.
Shwachman Diamond Syndrome Foundation Inc.
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About this organization
Mission
Raising awareness of and support for the Shwachman-Diamond Syndrome disease. This is done through educational conferences and the publication of periodicals such as newsletters and brochures. Research grants are also awarded for the study of the syndrome.
About
Provided research grants for the study of the rare disease Shwachman-Diamond Syndrome
Interesting data from their 2020 990 filing
The non-profit's aim, as stated in the filing, is “Raising awareness of and support for the shwachman-daimond syndrome disease. this is done through educational conferences and the publicaiton of periodalcs such as newsletters and brouchures. research grants are also awarded for the study of the syndrome.”.
When referring to its actions, they were outlined as: “Raising awareness of and support for the shwachman-daimond syndrome disease. this is done through educational conferences and the publicaiton of periodalcs such as newsletters and brouchures. research grants are also awarded for the study of the syndrome.”.
- The non-profit's address in 2020 is noted in the filing as 106 HILLSIDE DRIVE PO BOX 6723, FLORENCE, KY, 41022.
- The non-profit's form for 2020 reports a total of 0 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are less than $100,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is $74,535.
- The CEO compensation package within the organization is not established through a review and approval by a neutral party.
- The organization has 9 independent voting members.
- The organization is required to file Schedule B.
- The organization pays $868 in salary, compensation, and benefits to its employees.
- The organization pays $0 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization's financial statements were reviewed by an accountant.