Lupus Foundation Of America, Inc.
Lupus Foundation Of America, Inc.
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About this organization
Mission
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact. We envision a life free of lupus. Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
About
PUBLIC INFORMATION AND EDUCATION: THE LUPUS FOUNDATION OF AMERICA (THE FOUNDATION) EXECUTES ONGOING EFFORTS TO INCREASE PUBLIC AWARENESS AND UNDERSTANDING OF LUPUS AND ITS HEALTH CONSEQUENCES AS A TOOL TO IMPROVE EARLY DIAGNOSIS AND TREATMENT OF THE DISEASE. ONGOING EFFORTS INCLUDES PUBLIC AWARENESS CAMPAIGNS, MEDIA RELATIONS, ONLINE AND SOCIAL MARKETING, AND OUTREACH EFFORTS TO BUILD AND ENHANCE SUSTAINABLE CORPORATE AND COMMUNITY PARTNERSHIPS. THROUGHOUT THIS PAST YEAR, THE FOUNDATION CONTINUED TO EXPAND ITS REACH THROUGH IN-PERSON PROGRAMS, SOCIAL MEDIA PLATFORMS AND THE FOUNDATION'S WEBSITES, ENGAGING CELEBRITIES, AND PROMOTING ITS NATIONAL AWARENESS CAMPAIGN, BE FIERCE.TAKE CONTROL. THIS DIGITAL-BASED CAMPAIGN SEEKS TO REACH YOUNG WOMEN AT GREATEST RISK FOR LUPUS TO RECOGNIZE THE SIGNS OF LUPUS AND TO TAKE ACTION IF THEY ARE EXPERIENCING THEM (WITH THE ULTIMATE GOAL TO REDUCE THE TIME RECEIVING A LUPUS DIAGNOSIS). OUR EFFORTS THIS YEAR RESULTED IN NEARLY 7.4 MILLION IMPRESSIONS AND 70,000 VISITS TO OUR CAMPAIGN WEBSITE TO LEARN MORE. THE FOUNDATION REMAINS THE NUMBER ONE ONLINE SOURCE FOR LUPUS-RELATED INFORMATION, WITH AN AUDIENCE OF 7 MILLION ANNUAL VISITS TO ITS WEBSITE PROPERTIES, AND NEARLY 330,000 FOLLOWERS THROUGH ITS SOCIAL MEDIA PROPERTIES. IN ITS THIRD YEAR OF THE FIVE-YEAR COOPERATIVE AGREEMENT WITH THE U.S. CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC), THE FOUNDATION CONTINUES TO RAISE AWARENESS OF THE SIGNS AND SYMPTOMS OF LUPUS AND PROVIDE GUIDANCE ON THE NEXT STEPS TO TAKE IF LUPUS IS SUSPECTED, AS WELL AS INCREASE KNOWLEDGE ON MANAGING LUPUS. SOME KEY ACCOMPLISHMENTS THIS YEAR INCLUDE:- CREATED OR ENHANCED 80 EDUCATIONAL MATERIALS TIED TO UNDERSTANDING, DIAGNOSING, LIVING AND MANAGING LUPUS. EIGHTY-SIX PERCENT (86%) OF THOSE RESOURCES WERE ALSO CREATED IN SPANISH AND SIMPLIFIED CHINESE. - CONTINUED TO GROW OUR ONLINE COMMUNITY, LUPUSCONNECT, WHERE MORE THAN 7,000 PEOPLE WITH LUPUS AND CAREGIVERS MAKE CONNECTIONS AND FIND PRACTICAL INSIGHTS FROM OTHERS.- CREATED IMPROVED USER PATHS TO DIAGNOSTIC CONTENT WITHIN OUR NATIONAL RESOURCE CENTER ON LUPUS RESULTING IN AN 8% INCREASE IN NEW USERS TO CORE CONTENT PAGES.- LAUNCHED TAKE CHARGE, AN 8-WEEK EMAIL SERIES ON MANAGING LUPUS. IN JUST THREE SHORT MONTHS 4,500 USERS SUBSCRIBED TO THE SERIES.
Interesting data from their 2019 990 filing
The non-profit's mission is outlined in the filing as being “The lupus foundation of america, inc. (the foundation) is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.”.
When outlining its responsibilities, they were referred to as: “Improve the quality of life for people with lupus through research, education, support and advocacy.”.
- The state in which the non-profit operates has been officially reported as DC.
- The filing reveals the non-profit's address in 2019 to be 2121 K STREET NW NO 200, WASHINGTON, DC, 20037.
- As per the non-profit's form for 2019, they have 58 employees on their payroll.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $705,869.
- The organization has 20 independent voting members.
- The organization was formed in 1977.
- The organization pays $5,687,990 in salary, compensation, and benefits to its employees.
- The organization pays $2,580,452 in fundraising expenses.