National Ataxia Foundation
National Ataxia Foundation
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About this organization
Mission
To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
About
The National Ataxia Foundation is dedicated to improving the lives of people affected by Ataxia through support, education, and research. Ataxia is a rare neurological disease affecting tens of thousands of people in the US and many thousands more around the world. It is progressive, affecting a person’s ability to walk, talk, and use fine motor skills. Founded in 1957, NAF is a Minneapolis-based nonprofit organization established to help persons with Ataxia and their families. The Foundation’s vision of a world without Ataxia will be accomplished through its primary programs of funding Ataxia research, providing vital programs and services for Ataxia families, and partnering with pharmaceutical companies in the search for treatments and a cure. NAF works closely with the world’s leading Ataxia researchers, promoting exchanges of ideas and innovation in Ataxia discovery. Increased awareness about hereditary and sporadic ataxia disorders is promoted through a variety of education programs and materials for ataxia families, researchers, physicians, allied health professionals and the general public. The Foundation publishes 'Generations', a quarterly newsletter devoted to ataxia related articles, including the latest research and other information beneficial to individuals with ataxia. Other educational materials, such as books, videos and fact sheets are provided to persons with ataxia, family members and health care professionals on a "direct request" basis through the NAF office. The annual membership meeting, and sponsorship an/or/participation in national and international meetings, symposiums and seminars also serve to increase ataxia awareness. The National Ataxia Foundation attempts to locate people and families with hereditary and sporadic ataxia in order to provide them with information about ataxia. This is accomplished by providing updated information about ataxia to the general public by maintaining a website, creating public service announcements and publishing 'Generations'. The Foundation assists individuals and families by identifying clinical resources and making appropriate referrals for neurological care, genetic counseling and gene testing. The Foundation also assists people with locating resources within their own communities, including support groups.
Interesting data from their 2019 990 filing
The purpose of the non-profit is outlined in the filing as “The national ataxia foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research.”.
When discussing its operations, they were defined as: “Education, research and awareness of ataxia.”.
- The state where the non-profit operates has been legally reported as MN.
- The filing indicates that the non-profit's address in 2019 is located at 600 Highway 169 South No 1725, Minneapolis, MN, 55426.
- The non-profit has reported 8 employees on their form as of 2019.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $854,378.
- The organization has 20 independent voting members.
- The organization was formed in 1957.
- The organization pays $544,825 in salary, compensation, and benefits to its employees.
- The organization pays $357,103 in fundraising expenses.
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