International Essential Tremor Foundation
International Essential Tremor Foundation
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About this organization
Mission
The International Essential Tremor Foundation provides hope to the essential tremor (ET) community worldwide through awareness, education, support, and research.
About
Mailing information packets about ET, maintain an up to date listing of physicians specializing in ET and assisting in forming and maintaining ET support groups. Administration of clinics and public education in the area of tremor conditions.
Interesting data from their 2020 990 filing
The non-profit's mission, as described in the filing, is “To provide global educational information, services and support to those affected by essential tremor, and to health care providers, while promoting and funding et research.”.
When describing its duties, they were characterized as: “To provide global educational information, services and support to those affected by essential tremor, and to health care providers, while promoting and funding et research.”.
- The non-profit has complied with legal regulations by reporting their state of operation as KS.
- As of 2020, the non-profit has reported a total of 3 employees on their form.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $304,107.
- The compensation of the CEO of the organization is subject to review and approval by an independent body.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 5 independent voting members.
- The organization was formed in 1992.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $242,022 in salary, compensation, and benefits to its employees.
- The organization pays $40,517 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization's financial statements were reviewed by an accountant.