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Cure Jm Foundation

Cure Jm Foundation

Leesburg, VA 20176
Tax ID35-2222262

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By donating on this page you are making an irrevocable contribution to Daffy Charitable Fund, a 501(c)(3) public charity, and a subsequent donation recommendation to the charity listed above, subject to our Member Agreement. Contributions are generally eligible for a charitable tax-deduction and a yearly consolidated receipt will be provided by Daffy. Processing fees may be applied and will reduce the value available to send to the end charity. The recipient organizations have not provided permission for this listing and have not reviewed the content.
Donations to organizations are distributed as soon as the donation is approved and the funds are available. In the rare event that Daffy is unable to fulfill the donation request to this charity, you will be notified and given the opportunity to choose another charity. This may occur if the charity is unresponsive or if the charity is no longer in good standing with regulatory authorities.

About this organization

Revenue

$1,923,270

Expenses

$1,740,400

Website

curejm.org

Mission

Cure JM's mission is to find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.

About

THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 196 ,106 TO THE CURE JM CENTER OF EXCELLENCE IN JM RESEARCH AT STANLEY MANNE CHILDREN'S RESEARCH INSTITUTE, AFFILIATED WITH ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL. THIS FACILITY HAS CARED FOR OVER 600 CHILDREN WITH JDM AND OTHER FORMS OF INFLAMMATORY MYOPATHY. THE TEAM IS WORKING TO DISCOVER THE BIOMARKERS OF JM ACTIVITY TO GUIDE THE UTILIZATION AND/OR CREATION OF MORE EFFECTIVE THERAPIES. THEY HAVE ALREADY IDENTIFIED A VARIETY OF GENETIC AND ENVIRONMENTAL FACTORS THAT NOT ONLY PLAY A ROLE IN THE ONSET OF SYMPTOMS, BUT ALSO GOVERN THE CHILD' S OUTCOME; 2) 200,000 TO THE GW MEDICAL FACULTY ASSOCIATES MYOSITIS CENTER IN WASHINGTON, DC. AS A NATIONAL REFERRAL SITE FOR INFLAMMATORY MUSCLE DISEASES, THE CENTER IS OFTEN CALLED UPON TO EITHER ESTABLISH A DIAGNOSIS OR TO PROVIDE A SECOND OPINION RELATED TO THE MANAGEMENT OF CHILDREN AND ADULTS WITH JM. THE CENTER ALSO SPECIALIZES IN JM RESEARCH AND EDUCATION WORKING IN COLLABORATION WITH THE NATIONAL INSTITUTE OF HEALTH (NIH); 3) 100,000 TO NACTS TO ADVANCE TRANSLATIONAL SCIENCE RESEARCH IN THE AREA OF JUVENILE AUTOIMMUNE DISORDERS; 4) 130,000 TO GEORGE WASHINGTON UNIVERSITY FOR A STUDY TO EXPLORE RELATIONSHIPS BETWEEN VARIOUS COMPONENTS OF FATIGUE PRIMARILY MEDIATED BY THE CARDIORESPIRATORY SYSTEM ; 5 62,500 TO CARRA TO SUPPORT EXPANSION OF THE REGISTRY TO INCLUDE PATIENTS WITH JDM; 6) 120,000 TO UNIVERSITY OF CALIFORNIA, SAN FRANCISCO FOR A FELLOW TO CONDUCT RESEARCH REGARDING LONGITUDINAL IMMUNE PROFILING FOR BIOMARKER DISCOVERY IN PATIENTS WITH JDM; 7 40 ,000 TO UNIVERSITY OF PITTSBURGH TO DETERMINE IF ULTRASOUND CAN DETECT MUSCLE DISEASE IN CHILDREN WITH ACTIVE INFLAMMATION; 8) 1,031 FOR TRANSCRIPTION SERVICES AND RECORDING DEVICES RELATED TO A MENTAL HEALTH FOCUS GROUP; AND 10 65,000 TO UNIVERSITY OF BATH (UK) FOR VALIDATION OF COMMERCIAL MYOSITIS AUTOANTIBODY PANELS LEADING TO INCREASED ACCESSIBILITY OF TESTING, STANDARDIZATION IN TESTING AND IMPROVED DIAGNOSTIC CRITERIA.

Interesting data from their 2020 990 filing

From their filing, the objective of the non-profit is stated as “To find better treatments and a cure for juvenile myositis and improve the lives of families.”.

When talking about its functions, they were outlined as: “To find better treatments and a cure for juvenile myositis and improve the lives of families.”.

  • The legally reported state of operation for the non-profit is CA.
  • According to the filing, the non-profit's address in 2020 is 19309 WINMEADE DRIVE SUITE 204, LEESBURG, VA, 20176.
  • The non-profit organization as of 2020 has a total of 5 employees reported on their form.
  • Does not operate a hospital.
  • Does not operate a school.
  • Does not collect art.
  • Does not provide credit counseling.
  • Does not have foreign activities.
  • Is not a donor-advised fund.
  • Is not a private foundation.
  • Expenses are greater than $1,000,000.
  • Revenue is greater than $1,000,000.
  • Revenue less expenses is $182,870.
  • The CEO's compensation within the organization is determined through a thorough evaluation by an impartial entity.
  • The organization has a written policy that describes how long it will retain documents.
  • The organization has 9 independent voting members.
  • The organization was formed in 2003.
  • The organization has a written policy that addresses conflicts of interest.
  • The organization is required to file Schedule B.
  • The organization is required to file Schedule J.
  • The organization is required to file Schedule O.
  • The organization's financial statements were compiled or reviewed by an accountant.
  • The organization pays $660,872 in salary, compensation, and benefits to its employees.
  • The organization pays $357,618 in fundraising expenses.
  • The organization provides Form 990 to its governing body.
  • The organization has minutes of its meetings.
  • The organization has a written whistleblower policy.
  • The organization has fundraising events.
  • The organization has grants to organizations.