Danny Did Foundation
Danny Did Foundation
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About this organization
Mission
Founded by Chicago parents Mike and Mariann Stanton in January 2010 after the sudden death of their four-year-old son Danny, the Danny Did Foundation's primary mission is to prevent deaths caused by seizures. The Foundation is dedicated to advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families impacted by seizures, and gaining mainstream acceptance and use of seizure detection and prediction devices that may assist in preventing seizure-related deaths. The name of the Danny Did Foundation originates from the last line of Danny Stanton's obituary, written by his dad: “Please go and enjoy your life. Danny did."
About
THE DANNY DID FOUNDATION HOLDS AS ITS MAIN GOALS 1) ADVANCING AWARENESS OF EPILEPSY AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), 2) ENHANCING THE SUDEP COMMUNICATION MODEL BETWEEN MEDICAL PROFESSIONALS AND FAMILIES WHO ARE IMPACTED BY SEIZURES, AND 3) THE MAINSTREAMING OF DEVICES AND TECHNOLOGIES THAT MAY ASSIST IN PREVENTING DEATHS CAUSED BY SEIZURES. DANNY DID ACHIEVED THESE GOALS BY SUBSIDIZING THE COST OF THE EMFIT MOVEMENT MONITOR FOR 31 FAMILIES IN NEED, SUBSIDIZING THE COST OF THE SMARTWATCH DEVICE FOR 40 FAMILIES IN NEED, SUBSIDIZING THE COST OF SAMI ALERT DEVICES FOR 106 FAMILIES IN NEED, SUBSIDIZING THE COST OF SLEEP SAFE ANTI-SUFFOCATION PILLOWS FOR 3 FAMILIES IN NEED; SUBSIDIZING THE COST OF PULSEGUARD DEVICES FOR 23 FAMILIES IN NEED; AND COUNSELING HUNDREDS OF ADDITIONAL FAMILIES REGARDING THESE OPTIONS. DANNY DID ALSO REACHED ITS GOALS VIA THE DISTRIBUTION OF ITS SEIZURE SAFETY AND SUDEP BROCHURES TO HOSPITALS, DOCTORS, ADVOCATES AND FAMILIES NATIONWIDE, IN BOTH ENGLISH AND SPANISH; BY USING PRINT ADS, RADIO ADS, BILLBOARDS AND SOCIAL MEDIA TO ADVANCE AWARENESS AND EDUCATION; BY SPONSORING SUDEP-RELATED EVENTS; AND BY PRESENTING AT CONFERENCES, SCHOOLS AND MEETINGS ACROSS THE COUNTRY TO SPREAD UNDERSTANDING AND TOLERANCE FOR SEIZURES AND PEOPLE WITH EPILEPSY. DANNY DID ALSO FUNDED SCHOLARSHIPS FOR 36 FAMILIES TO ATTEND THE EPILEPSY EDUCATIONAL EXPO AND AWARENESS DAY AT DISNEYLAND.
Interesting data from their 2020 990 filing
According to the filing documents, the non-profit's mission is defined as “Founded in january 2010 by chicagoans mike and mariann stanton after the sudden unexplained death in epilepsy (sudep) of their four-year-old son danny, the danny did foundation is dedicated in its mission to prevent deaths caused by seizures. with more than three million people facing the challenges of epilepsy in the u.s.-and more than 50 million people affected by epilepsy worldwide-the issue of aggressively addressing sudep is as urgent as it is logical.”.
When referring to its tasks, they were referred to as: “See schedule o.”.
- The non-profit's state of operation has been legally reported as IL.
- According to the latest filing, the non-profit's address in 2020 is 3008 CENTRAL ST203, CHICAGO, IL, 60646.
- The total number of employees reported by the non-profit on their form for 2020 is 4.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is $84,892.
- The CEO compensation policy within the organization is established through an impartial evaluation and approval.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 14 independent voting members.
- The organization was formed in 2010.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $216,593 in salary, compensation, and benefits to its employees.
- The organization pays $74,855 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization's financial statements were reviewed by an accountant.