AFE Foundation
AFE Foundation
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About this organization
Mission
The AFE Foundation works to reduce maternal and infant mortality and morbidity from AFE by advancing research through our AFE Registry, promoting clinical education, expanding awareness, and supporting those affected by amniotic fluid embolism.
About
The AFE Foundation is the only organization dedicated to amniotic fluid embolism (AFE), a life-threatening birth complication that remains a leading cause of maternal death and suffering in the United States and abroad. The AFE Foundation is comprised of affected families, respected clinicians, world-renowned researchers, and engaged advocates working together to reduce maternal and infant mortality and morbidity (near death) due to amniotic fluid embolism. We do this through advancing research, promoting clinician education, raising awareness, and offering support to those affected. We envision a world where AFE no longer threatens the lives of mothers and their babies. The AFE Foundation is proud to underwrite the Amniotic Fluid Embolism Registry at Baylor College of Medicine (BCM) in Houston, Texas. The registry allows researchers greater insight into the individual cases of AFE as well as serves as a basis for clinical research. In 2018, the Registry began the next important step in discovery through its prospective research study and specimen collection. These specimens will be used in various proteomic and genomic studies. 3 scientific abstracts, papers and opinions based on data from the registry were published in medical journals in the areas of obstetrics and gynecology. The AFE Foundation continues to be a leading patient advocacy organization and holds multiple board positions in influential maternal health and patient safety and quality institutions and associations; most notably, the CDC Partnership for Reducing Maternal Mortality and Morbidity, the Council for Patient Safety in Womens Health Care, the California Maternal Quality Care Collaborative (CMQCC), Institute for Perinatal Quality Improvement, and the Obstetric Life Support Study. Additionally, the Connecticut Department of Health passed Section 68 of Public Act 18-168 which mandates all labor and delivery clinicians receive education on amniotic fluid embolism as provided by the AFE Foundation. The foundation continues to promote education among the many discipline in labor and delivery. This year more than 3,000 clinicians received direct education from the AFE Foundation through lectures, symposiums, panels, webinars, and publications. Approximately 30 families received direct support from the organization to assist with physical, emotional and financial hardships associated with experiencing an amniotic fluid embolism. The AFE Foundation continues to be the primary source of accurate and reliable information for patients, their families, and clinicians around the world. With website visits over 70,000 a year in over 50 countries, it remains the greatest source of global awareness and education of AFE. More detailed information about programs and services can be found on our website at www.afesupport.org.
Interesting data from their 2019 990 filing
According to the filing documents, the non-profit's mission is defined as “The afe foundation works to reduce maternal and infant mortality and morbidity from afe by advancing research through our afe registry, promoting clinical education, expanding awareness, and supporting those affected by amniotic fluid embolism.”.
When referring to its tasks, they were referred to as: “The afe foundation works to reduce maternal and infant mortality and morbidity from afe by advancing research through our afe registry, promoting clinical education, expanding awareness, and supporting those affected by amniotic fluid embolism.”.
- The non-profit's state of operation has been legally reported as CA.
- According to the latest filing, the non-profit's address in 2019 is 1611 S MELROSE DR STE 152, VISTA, CA, 92081.
- The total number of employees reported by the non-profit on their form for 2019 is 3.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor advised fund.
- Is not a private foundation.
- Expenses are less than $100,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is $104,120.
- The CEO compensation policy within the organization is established through an impartial evaluation and approval.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 0 independent voting members.
- The organization was formed in 2009.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule O.
- The organization pays $57,277 in salary, compensation, and benefits to its employees.
- The organization pays $11,883 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
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