Global Genes
Global Genes
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About this organization
Mission
Our mission is to connect, empower, and inspire the rare disease community. We envision a globally connected community equipped to eliminate the challenges of rare disease.
About
Outreach services: Provide capacity building educational and connective networking opportunities to patients, caregivers and disease foundations via in person meetings, print and online tools and online education.
Interesting data from their 2020 990 filing
The non-profit's mission, as documented in the filing, is “Global genes mission is to connect, empower and inspire the rare disease community.”.
When explaining its purpose, the activities were described as: “Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.”.
- The non-profit is legally allowed to operate in the state of CA, as reported.
- The filing provides the non-profit's address in 2020 as 28 Argonaut Suite 140 150, Aliso Viejo, CA, 92656.
- The non-profit has a total of 24 employees, as reported on their form for 2020.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Has foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $454,506.
- The CEO compensation strategy within the organization is determined through a review and approval process by a neutral party.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 9 independent voting members.
- The organization was formed in 2008.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule J.
- The organization is required to file Schedule O.
- The organization pays $1,499,844 in salary, compensation, and benefits to its employees.
- The organization pays $642,267 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization pays grants to individuals.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.