Interesting data from their 2020 990 filing

The non-profit's mission, as documented in the filing, is “Global genes mission is to connect, empower and inspire the rare disease community.”.

When explaining its purpose, the activities were described as: “Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online.”.

• The non-profit is legally allowed to operate in the state of CA, as reported.
• The filing provides the non-profit's address in 2020 as 28 Argonaut Suite 140 150, Aliso Viejo, CA, 92656.
• The non-profit has a total of 24 employees, as reported on their form for 2020.
• Does not operate a hospital.
• Does not operate a school.
• Does not collect art.
• Does not provide credit counseling.
• Has foreign activities.
• Is not a donor-advised fund.
• Is not a private foundation.
• Expenses are greater than $1,000,000.
• Revenue is greater than $1,000,000.
• Revenue less expenses is $454,506.
• The CEO compensation strategy within the organization is determined through a review and approval process by a neutral party.
• The organization has a written policy that describes how long it will retain documents.
• The organization has 9 independent voting members.
• The organization was formed in 2008.
• The organization has a written policy that addresses conflicts of interest.
• The organization is required to file Schedule B.
• The organization is required to file Schedule J.
• The organization is required to file Schedule O.
• The organization pays $1,499,844 in salary, compensation, and benefits to its employees.
• The organization pays $642,267 in fundraising expenses.
• The organization provides Form 990 to its governing body.
• The organization pays grants to individuals.
• The organization has minutes of its meetings.
• The organization has a written whistleblower policy.
• The organization has grants to organizations.
• The organization's financial statements were reviewed by an accountant.