Band of Parents
Band of Parents
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About this organization
Mission
Band of Parents is a grassroots, nonprofit organization that funds innovative research and clinical trials for neuroblastoma, helping increase the survival rate for this childhood cancer. We are a support network for the newly diagnosed and their families as they go through treatment. Our goal as parents is to fast track a cure using less toxic, targeted therapies.
About
In 2007, a group of desperate families asked the head of the neuroblastoma program at Memorial Sloan Kettering, Dr. Nai-Kong Cheung, what they could do to help their children. He said there was a severe lack of funding for research and that better treatments are on the horizon, but could only come to fruition with more research. At that moment, our founding members realized they could make a difference. A short time later, about 100 families of children in treatment for neuroblastoma came together to form the Band of Parents. We are from all walks of life and share the common bond of fighting this disease and the optimism that with help, a cure can be found. In the past decade, Band of Parents has expanded its advocacy, funding research in several major cancer centers throughout the United States and in Europe. Band of Parents has committed more than $10 million to neuroblastoma research.
Interesting data from their 2020 990 filing
The filing sets forth the mission of the non-profit as “The primary goal of the organization is to fund and support research related to the study of pediatric cancer cells including, but no limited to, the study of neuroblastoma cells and related structures.”.
When detailing its responsibilities, they were listed as: “The primary goal of the organization is to fund and support research related to the study of pediatric cancer cells including, but no limited to, the study of neuroblastoma cells and related structures.”.
- The state in which the non-profit is legally permitted to operate is NY.
- The address of the non-profit for 2020 according to the filing is PO BOX 335, DEWITTVILLE, NY, 14728.
- The number of employees reported by the non-profit on their form as of 2020 is 0.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $500,000 and $1,000,000+.
- Revenue less expenses is -$99,797.
- The CEO compensation scheme within the organization is not based on a review and endorsement process by an independent body.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 10 independent voting members.
- The organization was formed in 2007.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization pays $6,000 in salary, compensation, and benefits to its employees.
- The organization pays $179,912 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.