Sickle Cell Disease Association of Illinois
Sickle Cell Disease Association of Illinois
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About this organization
Mission
The mission of the sickle cell disease association of Illinois is to raise awareness of this disease and to improve the quality of life for those who suffer with it. We do this by providing community outreach programs such as new born screening, genetic counseling and education.
About
A patient grant program which assists with counseling education and direct grants. Provide various functions ie..summer camp, xmas party,baby showers, etc. that bring together sickle cell patient form ages 7 to 13. The programs are geared to strengthen the children emotionally as well as physically.Provided a scholarship program committed to helping sickle cell patients attain an education at the college and university level.Provide newborn screen support to at risk families.Participated in Illinois Sickle Cell Action Network (ISCAN) program established to collect critial information on those with sickle cell to improve medical follow up.
Interesting data from their 2019 990 filing
The purpose of the non-profit, as set forth in the filing, is “The mission of the sickle cell disease association of illinois is to raise awareness of this disease and to improve the quality of life for those who suffer with it. we do this by providing community outreach programs such as new born screening, genetic counseling and education.”.
When discussing its purpose, they were characterized as: “The mission of the sickle cell disease association of illinois is to raise awareness of this disease and to improve the quality of life for those who suffer with it. we do this by providing community outreach programs such as new born screening, genetic counseling and education.”.
- The state in which the non-profit is legally authorized to operate is IL, as reported.
- The form of the non-profit reports 5 employees as of 2019.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $250,000 and $500,000.
- Revenue is between $100,000 and $250,000.
- Revenue less expenses is -$8,721.
- The remuneration of the CEO of the organization is based on an independent review and approval process.
- The organization has 6 independent voting members.
- The organization was formed in 1971.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule O.
- The organization's financial statements were compiled or reviewed by an accountant.
- The organization pays $85,691 in salary, compensation, and benefits to its employees.
- The organization pays $8,926 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has fundraising events.
- The organization's financial statements were reviewed by an accountant.