Myotonic Dystrophy Foundation
Myotonic Dystrophy Foundation
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About this organization
Mission
Our mission is to enhance the quality of life of people living with myotonic dystrophy (DM) and accelerate research focused on treatments and a cure.
About
Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal of finding a treatment and eventually a cure for this chronic, degenerative disease.
Interesting data from their 2020 990 filing
According to the filing, the non-profit's mission is “To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.”.
When referring to its actions, they were described as: “To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.”.
- According to the law, the state of operation reported by the non-profit is CA.
- According to their form, the non-profit as of 2020 has a total of 5 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $23,582.
- The CEO compensation plan of the organization is determined by an independent party's review and approval.
- The organization has a written policy that describes how long it will retain documents.
- The organization has a foreign financial account.
- The organization has 7 independent voting members.
- The organization was formed in 2006.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule J.
- The organization is required to file Schedule O.
- The organization pays $598,551 in salary, compensation, and benefits to its employees.
- The organization pays $301,858 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization has fundraising events.
- The organization has grants to organizations.
- The organization's financial statements were reviewed by an accountant.
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