Parkinson Voice Project
Parkinson Voice Project
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About this organization
Mission
To preserve the speech and communication of individuals with Parkinson's and related neurological disorders through continuous speech therapy, follow-up support, research, education, and community awareness.
About
One in one hundred adults over the age of 60 will be diagnosed with Parkinsons. Of these individuals, nearly 90% will develop speech and swallowing issues. Without adequate treatment, these patients are at high risk of losing their ability to speak and to swallow. This can lead to isolation, dependence on others, feeding tubes, multiple hospitalizations, and death resulting from aspiration pneumonia caused by swallowing deficits. Since the muscles used for speaking are also used for swallowing, speech therapy is about much more than improving ones communication skills.Parkinson Voice Project specializes in the treatment of speech disorders related to Parkinsons disease. The organization has developed an effective treatment approach that combines education, individual speech therapy (SPEAK OUT!), and ongoing group therapy (The LOUD Crowd). SPEAK OUT! typically consists of twelve speech therapy sessions conducted by a licensed speech-language pathologist. Together, the patient and speech-language pathologist work their way through a SPEAK OUT! Therapy Workbook that consists of speech, voice, and cognitive exercises. After completing SPEAK OUT!, patients transition to The LOUD Crowd. Since Parkinsons is a progressive, degenerative condition for which there is no cure, ongoing support and encouragement is crucial to helping patients maintain their speaking abilities throughout the disease process. The LOUD Crowd provides this support through speech therapy groups and a singing program. Each year, Parkinson Voice Project hosts a performance where nearly 100 people with Parkinsons sing for a crowd of 3,000+ family, friends, and community supporters (in person and online). As patients are rehearsing for their show, their voices become stronger. Parkinson Voice Project facilitates over 500 LOUD Crowd groups annually. Parkinson Voice Projects vision is that every person with Parkinsons around the globe will have access to its two-part therapy approach. The organization provides training to speech-language pathologists through in-person workshops, online training, and grants awarded to speech therapy clinics that want to replicate the organizations treatment. In 2019, 149 speech therapy clinics were awarded a grant that provided free speech therapy supplies and training to its speech-language pathologists and graduate students. Parkinson Voice Project also hosts a Parkinsons Lecture Series whereby Parkinsons experts present on clinical, therapeutic, and motivational topics. These lectures are held at Parkinson Voice Project and also livestreamed on its website and Facebook page and then posted online to benefit the global Parkinsons community.
Interesting data from their 2020 990 filing
According to the filing, the non-profit's mission is “To preserve the voices of individuals with parkinson's and related neurological disorders through intensive speech therapy, follow up support, research, education, and community awareness.”.
When referring to its actions, they were described as: “To preserve the voices of individuals with parkinson's and related neurological disorders through intensive speech therapy, follow up support, research, education, and community awareness.”.
- According to the law, the state of operation reported by the non-profit is TX.
- As per the filing, the address of the non-profit for 2020 is 646 N COIT RD 2250, RICHARDSON, TX, 75080.
- According to their form, the non-profit as of 2020 has a total of 26 employees.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is $255,950.
- The CEO compensation plan of the organization is determined by an independent party's review and approval.
- The organization has a written policy that describes how long it will retain documents.
- The organization has 15 independent voting members.
- The organization was formed in 2005.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule B.
- The organization is required to file Schedule J.
- The organization is required to file Schedule O.
- The organization pays $1,151,693 in salary, compensation, and benefits to its employees.
- The organization pays $149,728 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a written whistleblower policy.
- The organization's financial statements were reviewed by an accountant.
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