Copd Foundation
Copd Foundation
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About this organization
Mission
The COPD Foundation is a patient-centered organization committed to preventing COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease, and to seeking cures while improving lives and advocating for all affected.
About
RESEARCHCOPD360 RESEARCH ENCOMPASSES THE COPD FOUNDATION'S ENTIRE RESEARCH INFRASTRUCTURE. THIS INCLUDES THE COPD PATIENT-POWERED RESEARCH NETWORK (COPD PPRN) WITH ITS EXTENSIVE CAPABILITIES, INCLUDING LONGITUDINAL FOLLOW UP AND THE ABILITY TO LEVERAGE THE COPD PPRN PLATFORM TO ADD ADDITIONAL SURVEYS AND SUBSTUDIES, PARTNERSHIPS WITH CRITICAL STUDIES LIKE COPDGENE AND SPIROMICS; THE COPD BIOMARKER QUALIFICATION CONSORTIUM (CBQC), THE BRONCHIECTASIS AND NTM RESEARCH INFRASTRUCTURE AND SOCIAL COMMUNITY AS WELL AS CLINICAL AND DEMONSTRATION STUDIES. COPD360RESEARCH PROVIDES A CRITICAL ROLE FOR THE PATIENT IN ALL STAGES OF RESEARCH, INCLUDING STUDY DEVELOPMENT DESIGN, IMPLEMENTATION AND DISSEMINATION. THE COPD PATIENT-POWERED RESEARCH NETWORK (COPD PPRN) IS A PATIENT-REPORTED REGISTRY THAT OFFERS AN OPPORTUNITY TO PARTICIPATE IN SURVEY-BASED RESEARCH AND PROVIDES A PLATFORM FOR PATIENTS TO LEARN ABOUT ADDITIONAL RESEARCH OPPORTUNITIES. COMPRISED OF OVER 7700 INDIVIDUALS, THE REGISTRY IS CURRENTLY "RESEARCH READY AND IS BEING UTILIZED IN VARIOUS STUDIES AT DIFFERENT LEVELS OF INVOLVEMENT.THE COPD BIOMARKER QUALIFICATION CONSORTIUM WAS FORMED IN 2010 AS A POWERFUL AND UNIQUE PUBLIC-PRIVATE PARTNERSHIP AMONG ACADEMIA, THE PHARMACEUTICAL INDUSTRY AND GOVERNMENT AGENCIES TO FAST-TRACK RESEARCHAND AVOID DUPLICATION OF STUDIES. THE GOALS ARE TO IDENTIFY BIOMARKER AND CLINICAL OUTCOME ASSESSMENT (COA) DRUG DEVELOPMENT TOOLS (DDTS) OF INTEREST. CBQC CURRENTLY HAS EIGHT ACTIVE PROJECTS RELATING TO FOUR BIOMARKERS (SRAGE, EOSINOPHILS, DESMOSINE AND IMAGING) AND FOUR CLINICAL OUTCOME ASSESSMENTS (CWR EXERCISE, CAT, PHYSICAL ACTIVITY AND PROACTIVE). THE BRONCHIECTASIS AND NTM RESEARCH REGISTRY (BRR) IS A CONSOLIDATED DATABASE OF NON-CYSTIC FIBROSIS (NON-CF) BRONCHIECTASIS AND/OR NONTUBERCULOUS MYCOBACTERIA (NTM) CLINICAL INSTITUTIONS ACROSS THE UNITED STATES. THE GOAL OF THE REGISTRY IS TO SUPPORT COLLABORATIVE RESEARCH AND ASSIST IN THE PLANNING OF MULTI-CENTER CLINICAL TRIALS FOR THE TREATMENT OF NON-CF BRONCHIECTASIS AND/OR NTM LUNG DISEASE. MORE THAN 3,300 PEOPLE HAVE ENROLLED IN THE REGISTRY.
Interesting data from their 2020 990 filing
The non-profit's mission, as documented in the filing, is “The copd foundation was established to speed innovations which will make treatments more effective and affordable, undertake initiatives that result in expanded services for copd patients, and improve the lives of patients with copd through education and research that will lead to prevention and someday a cure for the disease”.
When explaining its purpose, the activities were described as: “See schedule o.the copd foundation's mission is to prevent and cure chronic obstructive pulmonary disease and to improve the lives of all people affected by copd.”.
- The non-profit is legally allowed to operate in the state of FL, as reported.
- The filing provides the non-profit's address in 2020 as 3300 PONCE DE LEON BLVD, CORAL GABLES, FL, 33134.
- The non-profit has a total of 31 employees, as reported on their form for 2020.
- Is not a private foundation.
- Expenses are greater than $1,000,000.
- Revenue is greater than $1,000,000.
- Revenue less expenses is -$596,287.
- The organization has 14 independent voting members.
- The organization was formed in 2004.
- The organization pays $2,916,760 in salary, compensation, and benefits to its employees.
- The organization pays $1,041,359 in fundraising expenses.
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