International Research Foundation for Rsd-Crps Inc.
International Research Foundation for Rsd-Crps Inc.
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About this organization
Mission
The organization supports and encourages clinical investigations and medical research conducted throughout the world for treatment and cure of Reflex Sympathetic Dystrophy (RSD)/ Complex Regional Pain Syndrome (CRPS).
About
The organization recruits participants with CRPS to carry out its mission to support research on CRPS. Participants from around the world pay a fee to participate in tax-exempt program activities at the organization's leading center for excellence in CRPS. Such fees are applied toward the diagnosis and treatment of CRPS. This activity forms the basis for the organization's research and education initiatives, including the creation of multimedia educational material on CRPS that documents each participant's care provided by the organization. Thus, undergoing the treatment and receiving a fee-for-service is core to the organization's education mission. Proceeds from these services, that is, diagnosis and treatment, are allocated toward operating costs of the organization and toward the creation of an endowment to benefit the organization. The diagnosis and treatment of CRPS is performed by Dr. Kirkpatrick. Participants fill out a questionnaire and each participant meets with Dr. Kirkpatrick for at least one hour. Dr. Kirkpatrick evaluates the condition of each participant, including his assessment of their forms, medical history, medical records and physical examination. Dr. Kirkpatrick then formulates his assessment of the participant and presents the participant with treatment options appropriate to the situation, such as medications, nerve blocks and implantation of a spinal cord stimulator. This also includes research on the efficacy and safety of 3-day and 4-day ketamine infusions on an outpatient basis to evaluate CRPS. One such project during 2014 included the tabulating and analyzing of a coma study performed in Mexico. On December 17, 2014, President Obama made a commitment on behalf of the United States to normalize the relationship with Cuba. Since the time of that announcement, the foundation has been facilitating research through consultation with Cuban doctors on the treatment protocols for CRPS. See form 990, page 2, part III, line 4.B. for further explanations in this area. Fees for these services are based on usual and customary rates for the local marketplace. However, children (13 years or younger) are not denied evaluations based on the inability to pay. All fee arrangements are published on the organization's healthcare website (www.rsdhealthcare.org). This website also provides research protocols, travel information and driving directions for the surgery center. A list of affiliated institutions, patient information (such as medication instructions) and administrative information for private insurance reimbursement. Billing arrangements are made through private U.S. insurance and through workers' compensation claims. Billing arrangements also are negotiated through the Canadian government for Canadian participant referrals. After the one-time fee for service, research subjects are not charged for the rest of their life for any continuing evaluations. There is not denial of essential services (such as emergency services) to residents of the service area based on the inability to pay. Approximately 85% of all services provided by the organization are from persons working for the organization pro bono. The organization maintains two full-time employees and one full-time volunteer to assist Dr. Kirkpatrick with the administration of the organization's program activities. Approximately 104 participants received care at the organization during the year.
Interesting data from their 2020 990 filing
The non-profit's mission, as documented in the filing, is “The organization supports and encourages clinical investigations and medical research conducted throughout the world for treatment and cure of reflex sympathetic dystrophy (rsd)/ complex regional pain syndrome (crps). this is a chronic neurological disorder often referred to as crps. the organization promotes public and professional awareness of crps, educates the public (especially those afflicted with crps and their physicians), health care providers, insurance providers, government agencies and loved ones about the disease and how it should be diagnosed and treated.”.
When explaining its purpose, the activities were described as: “The organization supports and encourages clinical investigations and medical research conducted throughout the world for treatment and cure of reflex sympathetic dystrophy (rsd)/ complex regional pain syndrome (crps).”.
- The non-profit is legally allowed to operate in the state of FL, as reported.
- The filing provides the non-profit's address in 2020 as 1910 EAST BUSCH BLVD, TAMPA, FL, 33612.
- The non-profit has a total of 2 employees, as reported on their form for 2020.
- The non-profit has loans outstanding as of 2020.
- Does not operate a hospital.
- Does not operate a school.
- Does not collect art.
- Does not provide credit counseling.
- Does not have foreign activities.
- Is not a donor-advised fund.
- Is not a private foundation.
- Expenses are between $500,000 and $1,000,000+.
- Revenue is between $250,000 and $500,000.
- Revenue less expenses is -$200,948.
- The CEO remuneration policy within the organization is not established through a review and endorsement from a neutral party.
- The organization has 6 independent voting members.
- The organization was formed in 2002.
- The organization has a written policy that addresses conflicts of interest.
- The organization is required to file Schedule O.
- The organization pays $121,232 in salary, compensation, and benefits to its employees.
- The organization pays $0 in fundraising expenses.
- The organization provides Form 990 to its governing body.
- The organization has minutes of its meetings.
- The organization has a business related organization transaction.